My regular reminder that just being one of these observational data points is Doing Something and a Contribution even if I'm not in an active study. #enrollHD #huntintons
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Enroll! Newsletter translations are on their way!
You will soon be able to find them at enroll-hd.org/for-hd-famil...
#EnrollHD
#HuntingtonsDisease
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[SP] En la reunión de la SEN se reunieron los 13 centros españoles de Enroll-HD, EHDN y FEPAEH para apoyar a la comunidad de la EH.
[ENG] The 13 Spanish centers participating in Enroll-HD, EHDN, and FEPAEH met at the SEN conference aiming to support the HD community.
#EnrollHD
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#EnrollHD appointment today! Went very well! Really enjoy being part of #huntingtonsdisease and working to #cureHD
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Join us for the unveiling of the Art4HD Mural in Prague on March 13. This amazing work was created by DJLu Juegasiempre in collaboration with the HDYO. The Art4HD project is coordinated by #EnrollHD Global Manager, Selene Capodarca.
#HuntingtonsDisease
#Art4HD
#HDYO
#FactorH
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[ENG] On March 3, 2025, our Lanco Marta was able to attend the first TERRETA (Treatments and rare diseases: advanced therapeutic strategies) conference in Valencia, Spain.
The day had the participation of patients and their families.
#EnrollHD
#HuntingtonsDisease
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[SP] El 03 Marzo de 2025 nuestra Lanco Marta ha podido asistir a las 1ras jornadas de TERRETA (Tratamientos y enfermedades raras: estrategias terapeuticas avanzadas) en Valencia, España.
Una jornada con la participación de pacientes y sus familias.
#EnrollHD
#HuntingtonsDisease
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[IT] Il 13 febbraio 2025, alla Fondazione Prada di Milano, si è tenuto un incontro sulla Malattia di Huntington.
[ENG] On February 13, 2025, at Fondazione Prada in Milan, an event on Huntington’s Disease took place.
#FondazionePrada #EnrollHD #HuntingtonsDisease
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[SP] El equipo de EH de Burgos a recibido un reconocimiento por su trabajo multidisciplinar con los pacientes con EH. ¡¡Enhorabuena!!
[ENG] The HD team at Burgos was awarded a recognition for their multidisciplinary work with HD patients. Congrats!!
#EnrollHD
#HuntingtonsDisease
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