👋 Welcome back to #ProjectThursday 💡

We collect the latest news from the biobanking world for you here every Thursday in one article. Enjoy! 🤝

❗️Article: buff.ly/JdDT6X1

Today news from #Bigpicture #ERDERA #EUCiP #RISCALE #canSERV #PERIFORMANCE #UNCANConnect #PRIMTECH3R

👋 See you next week! 💙🧡

GitHub - cmbi/AutoQ-RWD: Automated data Quality Metrics Assesment (AutoQ) in Real World Data (RWD) for Common Data Elements (CDE) Automated data Quality Metrics Assesment (AutoQ) in Real World Data (RWD) for Common Data Elements (CDE) - cmbi/AutoQ-RWD

third speaker is Sergi Aguiló-Castillo (@Radboud_uni) who will talk about Automated Quality Metrics Assessment in Real World Data for Rare Diseases Registries.

AutoQ-RWD: https://github.com/cmbi/AutoQ-RWD

#swat4hcls

🌍 European Reference Networks (#ERNs) connect rare disease experts across Europe. Within #ERDERA, ERNs help bring clinicians, researchers & patients together to share knowledge, advance research and improve care where it’s needed most. Expertise, connected. 💙 #RareDiseases

📣 Registrations are now open for Undiagnosed Day 2026!
On 30 April, join experts in Gdańsk for a two-day, clinician-led meeting focused on phenotyping, diagnosis, and collaboration in undiagnosed rare conditions. 🔗 Find out more about this event: https://loom.ly/kmU2JoY #ERDERA #RareDisease

📍 This week in Sofia, Teamit supported two key milestones for rare disease collaboration in Europe through its communication expertise: the first #ERDERA National Alignment Board meeting and the #IRDiRC Assembly & Scientific Committees Meeting.
🔗 Read more: https://loom.ly/KNQe0lk #Teamit

🚀 First in-person ERDERA National Alignmnet board meeting in Sofia!
#ERDERA brought together representatives from across Europe and beyond, alongside European Commission stakeholders, IRDiRC and other partners to reinforce collective alignment and empower research. 🔗 More: https://loom.ly/K2bkDP8

💡 Welcome back to our #ProjectThursday

We collect the latest news from the biobanking world for you here in one article. Enjoy! 🤝

❗️ Article: buff.ly/EKhSZRa

Today with #biobank.cy #CANDLE #canSERV #EPPerMed #EUCiP #GDI #ERDERA #EUCAIM #PROPHET #QUANTUM #RISCALE

👋 See you here next week! 💙🧡

💡 New ERDERA Knowledge Pill! What are National Mirror Groups (NMGs) and how do they strengthen collaboration in the rare disease ecosystem?
🔎 Discover their role within the #ERDERA: https://loom.ly/TvHDtK8
#RareDiseases #EUResearch #HealthResearch

👋 It's #ProjectThursday

We collect latest news from the biobanking world for you here every week in one article. Enjoy! 🤝

❗️ Article: buff.ly/eYILTT7

Today with news from #Bigpicture #EPPerMed #EPND @cancerinfoportal.bsky.social #GDI #biobank.cy #ERDERA #QUANTUM #EUCAIM

👋 See you next week 💙🧡

Gender can shape diagnostic delays and the evidence base in rare-disease research. 👉 #ERDERA looks at what Europe-wide surveys are telling us, and why sex and gender belong in research quality. 🔗 More: https://loom.ly/gO-ECRs #InternationalWomensDay #RareDiseaseAwareness #GenderInResearch

Masterclass on EU funding and proposal preparation - ERDERA Participants will learn where to find upcoming calls, how to assess which opportunities fit their organisation’s goals, and what is required to prepare a strong proposal.

🚀 Last chance to join the Masterclass on EU funding & proposal preparation with Eva Molero, CEO at Teamit! 💡Learn how to find EU calls, connect with #Partners, and write a winning proposal 📝
🗓 3 March 2026 | 🕒 12:30 p.m. (CET) | Online
🔗 Register now: https://loom.ly/EY39jgI
#Teamit #ERDERA

Rare Disease Day / Patient story

Today is RARE DISEASE DAY! #EU4HEALTH #JARDIN #Erdera #BAGSelbsthilfe #ACHSE #HormonesMatter please foster research and strengthen registries #Eurreb #rareEndoERN

Homepage - ERDERA ERDERA Survey Exploring consultancy needs for rare disease research More ERDERA joins the Rare Disease Community for Rare Disease Day 2026 Join the movement LATEST News & Updates View all […]

We are committed to supporting #ERDERA in strengthening Europe’s rare disease research ecosystem 🙌 Better and responsible data sharing is crucial to reach faster and more reliable diagnoses

Find out more about the project: erdera.org

⏳ Only one week left to register | Open-access iPSC training – 6 March

If you work with iPSCs and want to strengthen reproducibility and impact, come join us!

📅 6 March | Registration closing soon

lnkd.in/extr-ExX

#iPSC #Training #raredisease #ERDERA #EBiSC

🌍For #RareDiseaseDay, we’re spotlighting the hidden expertise that helps rare disease research move forward. Mentoring, regulatory advice, and methodological guidance give teams the support they need to overcome challenges and strengthen their work.
💚Learn more at #ERDERA: https://loom.ly/_JM9nYw

👋 Welcome back to #ProjectThursday 💡
We collect latest biobanking news for you here every week in 1 article. Enjoy! 🤝

Today's news from #Bigpicture #CANDLE #canserv #EPPerMed #ERDERA #EU-CiP #QUANTUM #RI-SCALE #PROPHET @ericforum.bsky.social

‼️ Article: buff.ly/iVlosIh

👋 See you next week! 💙🧡

🌍For #RareDiseaseDay, we highlight how public and private #Funding drives rare disease research. Investment helps teams collaborate, generate evidence, and advance new therapy options.
💚Learn more at #ERDERA: https://loom.ly/zuMFcZw

Daria Julkowska, ERDERA Scientific Coordinator, attended this week the European Parliament for “Make Rare Count" 👉 The discussions highlighted the need for a more coordinated EU‑level action plan to strengthen an effective policy framework for rare diseases across Europe. #ERDERA #RareDisease

More connections than you can imagine! ✨
💚 For 30M Europeans with a rare disease, collaboration across borders is essential. Learn how ERDERA links experts worldwide: https://loom.ly/_JM9nYw
🔗 Join the #RareDiseaseDay campaign: https://loom.ly/P7AILoo
#MoreThanYouCanImagine #ERDERA

Together Through the Uncommon National Conference on Rare Diseases

“BBMRI-ERIC fully supports the European priority on rare diseases: Our directory features samples/data on rare diseases, we are part of #ERDERA, contribute to the #RareDiseaseMoonshot and collaborate with #EuroBioBank.” J. Pavlic-Zupanc at the Maltese Nat. Conference on Rare Diseases

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🌍For #RareDiseaseDay, we’re shining a light on the forces that drive progress in rare disease research. Training and education empower researchers, clinicians, and patient communities to accelerate research, improve diagnosis, and deliver better care.💚Learn more at #ERDERA: https://loom.ly/_JM9nYw

👋 Welcome back to #ProjectThursday

We collect biobanking project news for you here every Thursday in one article.

Today with #AHEAD #Bigpicture #biobank.cy #CANDLE #EPPerMed #ERDERA #EUCiP #GDI #INTEGRATE-LMedC #RI-SCALE #UNCANConnect

❗️ Article: buff.ly/qyyP47K

👋 See you here next week! 💙🧡

📣 Call for young rare disease advocates! ERDERA is inviting young patients aged 12–21 to join the in‑person training in Paris on 23–25 April 2026. 🔗 Find out more and apply: https://loom.ly/yaURaLI
⏳ Application deadline: 8 March 2026 #ERDERA #RareDisease

🌍 For #RareDiseaseDay, ERDERA joins the global movement to promote equity, visibility and progress for people living with rare diseases and their families. 💚 Find out how we turn #ResearchCollaboration into real impact👉 https://loom.ly/_JM9nYw #MoreThanYouCanImagine #ERDERA

📣 Daria Julkowska, #ERDERA Coordinator, will be attending the European Parliament on 24 February for “Make Rare Count – Driving EU Policy Action on Rare Diseases.” 🌍 Policymakers, patients, researchers & industry will discuss meaningful EU action on #RareDiseases.

🙌 It's #ProjectThursday

Our weekly project news sweep in one LinkedIn article:

🗞️ Read the Article: buff.ly/y5bPQD0

🤝 Today with news from #Bigpicture #Bioindustry4.0 #biobank.cy #EPND #EPPerMed #ERDERA @cancerinfoportal.bsky.social @ericforum.bsky.social #GDI #INTEGRATELMedC #RISCALE #QUANTUM

🌍 What are national mirror groups & why do they matter in #RareDisease research? Victoria Hedley, Rare Disease Policy Manager at Newcastle Uni, explains their role in supporting collaboration & innovation 🎥 Watch the interview on YouTube to learn more: https://loom.ly/09gqMRM
#RareDiseases #ERDERA

👋 Welcome back to #ProjectThursday 💡

We collect latest news from the biobanking world here every Thursday in one article

❗️🔗 Article: buff.ly/l2VfKgY

Today with #BigPicture #biobank.cy #EPPerMed #ERDERA #canSERV
@cancerinfoportal.bsky.social #UNCANConnect #GDI #INTEGRATE #EUCAIM

Enjoy
👋 💙🧡

Advancing the Rare Brain Disease Ecosystem – European Brain Council (EBC) 24 February 2026 Rare Disease Day 2026 Advancing the Rare Brain Disease Ecosystem This event will take place at BlankSpace Place du Luxembourg, Rue d'Arlon 80, 1040, Brussels, Belgium.

Advancing the rare brain disease ecosystem 🧠 On 24 Feb 2026 #ERDERA will join a panel discussion on how recent EU policy and regulatory developments can accelerate research, innovation and access for rare brain diseases. 👉 Register to join: https://loom.ly/LsbiQCg

👋 Welcome back to #ProjectThursday 💡

We collect latest news from the biobanking world here every Thursday in one article

❗️🔗 Article: buff.ly/1RJfL2c

Today with #biobank.cy #EPND #EPPerMed #ERDERA @cancerinfoportal.bsky.social #PROPHET #QUANTUM #UNCANConnect @ericforum.bsky.social

Enjoy
👋 💙🧡