Thank you to one of our Smart Patients members for reminding us that it’s World FTD Awareness Week.

This is why awareness matters: when families and patients speak up, they drive visibility, accelerate research toward better diagnoses, treatments, and—someday—a cure.
#FTDAwareness #SmartPatients

During World FTD Awareness Week, we recognize the challenges care partners face. The daily demands of FTD can make research participation difficult, yet their voices are essential to progress.

Learn more: ftdregistry.org/press/how-ca...

#WorldFTDAwarenessWeek #endFTD #FTDResearch #FTDAwareness

FTD can steal your words, your connection, your voice. Join the FTD Disorders Registry to help researchers find treatments and a cure. www.FTDRegistry.org

#endFTD #FTDAwareness #WorldFTDAwarenessWeek #FTDResearch

FTD disorders can make someone seem like a stranger to their loved ones.

Registry data show three of the most distressing symptoms are impaired judgment, personality changes, and mood changes. www.ftdregistry.org

#WorldFTDAwarenessWeek #EndFTD #FTDAwareness #FTDResearch

From Surveys to Science: How Registry Data Becomes Research - FTD Disorders Registry Every survey response in the Registry Research Study helps turn lived experience into research data that drives discovery.

World FTD Awareness Week starts with action!

See how survey responses from the Registry Research Study become powerful data that drives FTD disorders research.

Read more: ftdregistry.org/press/from-s...

#endFTD #FTDAwareness #FTDResearch

Memory isn’t usually the first thing to change in FTD.

Registry data shows the most common early symptoms are:
• Language challenges
• Cognitive changes
• Mood changes

Raising awareness helps speed diagnosis & research.
www.FTDregistry.org

#EndFTD #FTDAwareness #FTDResearch

World FTD Awareness Week begins today! FTD often starts between ages 45–65, making it the most common dementia under 60. Let’s raise awareness and drive research toward treatments and a cure. #EndFTD #FTDAwareness #USA

Get Ready for World FTD Awareness Week - FTD Disorders Registry World FTD Awareness Week is September 21-27, 2025.

World FTD Awareness Week is coming Sept 21–27, 2025.
This year we ask: “What If It’s FTD?”

Update your profile, use the toolkit, and share your story to raise #FTDawareness.

Learn more: ftdregistry.org/press/get-re...

#EndFTD

Register today for AFTD's 2025 Education Conference on May 1-2 at the Omni Interlocken Hotel in Denver or online via Zoom.
Register now: bit.ly/4aVnfo4
#EndFTD #FTDAwareness #FTD