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Ceará e Atacama trocam experiências sobre dessalinização e reuso de água O workshop ‘Governança do futuro: Dessalinização e reuso de águas no Brasil’, realizado nesta segunda-feira (19), no Auditório Carlos Alberto Studart Gomes, no BS Design, consolidou-se como um espaço qualificado de reflexão estratégica sobre soluções para a escassez hídrica. O encontro reuniu especialistas, autoridades e pesquisadores para debater o intercâmbio técnico entre o Ceará e […] O post Ceará e Atacama trocam experiências sobre dessalinização e reuso de água apareceu primeiro em Portal IN - Pompeu Vasconcelos - Balada IN.
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CGE Ceará participa de encontro nacional sobre controle interno Representantes do órgão estiveram em Brasília em evento que debateu avanços e desafios na gestão pública
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ME/CFS – anerkannt, aber übersehen 🚨

ME/CFS ist seit 1969 von der WHO als neurologische Erkrankung anerkannt. Trotzdem bleibt sie bis heute massiv unterversorgt und verkannt – mit teils dramatischen Folgen für Betroffene.

Dabei liegen evidenzbasierte, symptomatische Therapieansätze (Evidenzgrad 2) längst vor – empfohlen von führenden Expert:innen wie Prof. Scheibenbogen, Prof. Untersmayr, Prof. Hoffmann, Prof. Schieffer und Prof. Putrino. Sie betonen Pacing, gezielte Atem- und Physiotherapie sowie medikamentöse off Label-Optionen – wie zuletzt im D-A-CH-Konsensusstatement und in dieser zentralen Übersicht:

🔗 https://onlinelibrary.wiley.com/doi/epdf/10.1002/pmrj.13397

Es ist Zeit, die wissenschaftlichen Erkenntnisse umzusetzen – zum Wohl der Betroffenen.

#MECFS #LongCOVID #Neurologie #FUNCAP #PEM #POTS #Scheibenbogen #Untersmayr #Putrino #Schieffer #Hoffmann

ME/CFS – anerkannt, aber übersehen 🚨 ME/CFS ist seit 1969 von der WHO als neurologische Erkrankung anerkannt. Trotzdem bleibt sie bis heute massiv unterversorgt und verkannt – mit teils dramatischen Folgen für Betroffene. Dabei liegen evidenzbasierte, symptomatische Therapieansätze (Evidenzgrad 2) längst vor – empfohlen von führenden Expert:innen wie Prof. Scheibenbogen, Prof. Untersmayr, Prof. Hoffmann, Prof. Schieffer und Prof. Putrino. Sie betonen Pacing, gezielte Atem- und Physiotherapie sowie medikamentöse off Label-Optionen – wie zuletzt im D-A-CH-Konsensusstatement und in dieser zentralen Übersicht: 🔗 https://onlinelibrary.wiley.com/doi/epdf/10.1002/pmrj.13397 Es ist Zeit, die wissenschaftlichen Erkenntnisse umzusetzen – zum Wohl der Betroffenen. #MECFS #LongCOVID #Neurologie #FUNCAP #PEM #POTS #Scheibenbogen #Untersmayr #Putrino #Schieffer #Hoffmann

ME/CFS – anerkannt, aber übersehen 🚨

🔗 onlinelibrary.wiley.com/doi/epdf/10....

Es ist Zeit, die wissenschaftlichen Erkenntnisse umzusetzen – zum Wohl der Betroffenen.

#MECFS #LongCOVID #Neurologie #FUNCAP #PEM #POTS #Scheibenbogen #Untersmayr #Putrino #Schieffer #Hoffmann

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Highly viewed & important Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire
by Kristian Sommerfelt, @tschei.bsky.social, Katharine A. Seton and Simon R. Carding www.mdpi.com/2077-0383/13... #FUNCAP #ME/CFS #PEM #pwME

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Home - funcap.no FUNCAP is used to assess functional capacity in patients with diseases where post exertional symptom exacerbation (PEM, PENE, PESE) is present

#FUNCAP Functional Capacity Questionnaire www.funcap.no @meforeningen.bsky.social

batemanhornecenter.org/wp-content/u... @batemanhornecenter.bsky.social

Available as an app too apps.apple.com/us/app/funca...

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Pauta: projeto garante ao servidor o direito de matricular filhos na escola onde trabalha
Pauta: projeto garante ao servidor o direito de matricular filhos na escola onde trabalha YouTube video by TV Senado

#Pauta: Plenário vota projeto que garante ao servidor o direito de matricular filhos na escola onde trabalha. Comissão de Infraestrutura analisa projeto que destina a renda de um concurso por ano da loteria para o #Funcap. #CPIdasBets ouve o depoimento de Robinson Barreirinhas. youtu.be/EzT0h1vn9b8

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Pauta: uso de celulares nas escolas, cenário internacional e doenças raras
Pauta: uso de celulares nas escolas, cenário internacional e doenças raras YouTube video by TV Senado

#Pauta | Conselho de Comunicação do Congresso debate a lei que restringiu o uso de #celulares nas escolas. Comissão de Infraestrutura pode votar projeto que destina recursos da loteria para o #Funcap. Sessão solene homenageia o Dia Mundial das Doenças Raras.
youtu.be/TYjmi4hdz7k

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Home - funcap.no FUNCAP is used to assess functional capacity in patients with diseases where post exertional symptom exacerbation (PEM, PENE, PESE) is present

This most accurate #PEM definition is brought to us by the 🇳🇴 ME Association @meforeningen.bsky.social and the #FUNCAP questionnaire for #ME/CFS #pwME link www.funcap.no

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Home - funcap.no FUNCAP is used to assess functional capacity in patients with diseases where post exertional symptom exacerbation (PEM, PENE, PESE) is present

#FUNCAP is a questionnaire that has been developed to assess functional capacity in patients with diseases where post exertional malaise (PEM) is present. #PEM is also known as post exertional symptom exacerbation (PESE) or post exertional neuroimmune exhaustion (PENE).

www.funcap.no

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The Life Improvement Trial - Open Medicine Foundation The Life Improvement Trial (LIFT) investigates the efficacy of Pyridostigmine and Low-Dose Naltrexone (LDN) in ME/CFS patients.

It incorporates a range of answers that accommodates even severe patients. Based on the design of the survey and its validation, OMF is using the #FUNCAP survey as a primary outcome measure in our clinical trial 👉 ow.ly/ABVp50Vb14y.

#PENE #PESE #PEM #LongCOVID #pwME

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Great app for tracking your functional capacity over time!
(only for iOS unfortunately)
#FunCap

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‎FUNCAP ‎- For patients diagnosed with ME/CFS - Self-evaluate and record your FUNctional CAPacity - Assess your capacity using FUNCAP55 or FUNCAP27 by scoring questions across 8 domains, eg

The #FUNCAP for patients diagnosed with #MECFS is now available as a free app for iphone: Self-evaluate, track and record your FUNctional CAPacity and your degrees of #PEM: apps.apple.com/app/funcap/i... @tschei.bsky.social 💙🫂💙

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Sinds tweede dosis Montelukast zijn de #POTS klachten wat minder. Hierdoor kon ik vaak lang genoeg rechtop zitten zonder en ook nog zonder pijn in de ribben om te puzzelen, kon ik vanmiddag best lang meedoen (liggend en met NC maar toch) meedoen met Sinterklaasmiddag bij ons thuis en m’n #FunCap is⬆️

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