After the 23andMe data breach exposed 6.9 million users, genetic data privacy is no longer theoretical.

In Europe, GDPR classifies genetic data as "special category" — the highest protection level. This is why we built DeepDNA as EU-only infrastructure.

#GeneticPrivacy

House advances Genetic Information Privacy Act to third reading H.639 would establish the Genetic Information Privacy Act with opt‑in consent, limits on disclosures and transfers (including restrictions on storage in designated foreign adversary countries), consumer revocation rights, and enforcement via Vermont consumer‑protection laws; the Commerce Committee voted 10‑1‑0 and the House ordered third reading after floor discussion.

Vermont is on the brink of enacting one of the strongest protections for genetic privacy in the nation, ensuring your most personal data is safeguarded like never before.

Click to read more!

#VT #CivicAccountability #CitizenPortal #GeneticPrivacy #VermontConsumerRights #DataProtection

Important work on #ELSI of #geneticprivacy - After 23andMe’s bankruptcy, the genetic data of 15M users was sold to a nonprofit led by its former CEO—raising new alarms about weak U.S. privacy laws. A new Science article urges Congress to enact stronger federal protections

Ever wonder who really owns your DNA? 🤔

Our new post explores the complex world of genetic privacy, data, and the legal battles that are shaping our future! 🧬

#GeneticPrivacy #DataOwnership #Genomics

DNA Fingerprinting’s Evolution: From Lab Bench to Legal Battleground "Explore the complex evolution of DNA fingerprinting, from its foundational discovery to modern forensic applications, ethical dilemmas, and future challenges."

Unpacking the Evolving Power and Complex Challenges of DNA Evidence
#DNAForensics #ScienceOfJustice #GeneticPrivacy #FactRage #FactRageNews

tglm.us/ai53f

23andMe's bankruptcy hasn't just raised concerns; it has triggered bipartisan investigations from Congress, the FTC, and state attorneys general. This case forces us to ask: Who controls your data and what happens when trust is broken?

#DataDignity #GeneticPrivacy

Struggling DNA testing firm 23andMe to be bought for $256m It said new buyers Regeneron had committed to protect user data as part of the deal.

Two months ago, GDO experts clarified how genetic information could be used following 23andMe’s bankruptcy. Read more about what has happened since here: www.bbc.com/news/article...

#GeneticPrivacy #GeneticData #23andMe #DataSecurity #EthicsInTech #Biotech #GenomicGovernance #GeneticDiscrimination

In the #U.S., newborns get a heel prick—and the state keeps their #DNA for decades. Often without consent. Sometimes used by police.

#Europe? Most countries destroy samples after testing.
Different continent, different values.

#GeneticPrivacy #HumanRights #SurveillanceState #DataEthics #EUvsUS

Yes, the #U.S. is storing children’s #DNA.
Newborns? Sampled at birth. Migrant kids? Swabbed and fed into #FBI databases.

But sure, tell me again how it’s the “other countries” we should fear.

#DNAHarvesting #SurveillanceState #ACLU #BigBrotherUSA #GeneticPrivacy #News #RuleOfLaw #HumanRights

Regeneron to Acquire 23andMe in Court-Supervised Sale, Promises to Maintain Privacy Policies | AI News Brew <p>SAN FRANCISCO - In a significant development in the biotechnology sector, Regeneron Pharmaceuticals, Inc. (NASDAQ: REGN) has entered into a definitive agreement to acquire 23andMe Holding Co. (OTC:...

Regeneron to Acquire 23andMe in Court-Supervised Sale, Promises to Maintain Privacy Policies
ainewsbrew.com/article/4248

#Regeneron #23andMe #BiotechAcquisition #GeneticPrivacy #PharmaTakeover

Alabama Senate committee approves bill creating crime of genetic theft A Senate committee Tuesday approved a bill that would criminalize the use of someone’s genetic material without their approval. HB 449, sponsored by Rep. Ben Robbins, R-Sylacauga, creates a set of crimes related to intentionally transferring genetic material or genetic information to another party without the owner’s consent. “My bill, HB 449, creates the crime […]

Alabama Reflector:Alabama News Beacon #GeneticTheft #PrivacyRights #GeneticPrivacy

69th Legislature passes SB 410 on genetic data storage and compliance penalties Legislature enacts regulations on genetic data storage and compliance requirements for institutions.

Montana's new Senate Bill 410 could redefine the future of genetic data privacy, but is it a leap forward or a leap too far?

Click to read more!

#MT #CitizenPortal #InnovationBalance #MontanaLegislation #DataProtection #GeneticPrivacy

Oregon legislature revises genetic information consent laws under HB 3093 Oregon amends laws on obtaining genetic information and consent with HB 3093.

Oregon's HB 3093 is stirring controversy by allowing law enforcement to collect DNA samples from incarcerated individuals, all while emphasizing the crucial need for informed consent.

Click to read more!

#OR #PublicSafety #GeneticPrivacy

23andMe’s demise is a warning: the US needs to overhaul genetic data protection | Dalton Conley We’re moving toward a society where genetic information is a part of everyday life – and we don’t want it in the wrong hands With a heavy heart, I clicked on my 23andMe account on a recent morning,...

23andMe’s demise is a warning: the US needs to overhaul genetic data protection | Dalton Conley #Science #HealthandMedicine #GeneticsandGenomics #GeneticPrivacy #DataProtection #HealthDataSecurity

The Closure of openSNP: Navigating Privacy in Genetic Data Sharing | The DefendOps Diaries Explore the privacy challenges in genetic data sharing highlighted by openSNP's closure.

openSNP, once a trailblazer in genetic data sharing, just shut down amid big privacy fears. What does this mean for the future of our personal genetic info?

#geneticprivacy
#datasharing
#cybersecurity
#privacyconcerns
#geneticdata

Federal Trade Commission Chairman Andrew N. Ferguson Issues Letter on 23andMe Bankruptcy Impact to Consumers Today, Federal Trade Commission Chairman Andrew N Ferguson issued a letter to the U.S.

The FTC issued a strong reminder: Privacy commitments don’t disappear in bankruptcy.

As 23andMe’s restructuring unfolds, this is a critical step toward reinforcing data ethics and consumer trust. 🧬

#GeneticPrivacy #23andMe #DataGovernance #FTC #TheDataDoctor #DigitalEthics #DataStrategyAdvisors

After 23andMe Bankruptcy, Customers Urged To Delete Their Data The company has genetic data of 15 million people, which could be shared with a future buyer. Here’s how to delete it.

23andMe has filed for bankruptcy and consumers are urged to delete their data. How safe is your genetic information now? #23andMe #DataProtection #GeneticPrivacy. www.sciencefriday.com/segments/23a...

23andMe’s DNA Data Is Up for Sale: What Happens to Your Genetic Information? 23andMe’s DNA Data is Up for Sale: What Does That Mean for Your Genetic Information? On March 23, 23andMe, the

The Hidden Value of Your DNA: Why Companies Want Your 23andMe Data
#23andMe #GeneticData #PrivacyConcerns #DNAData #DataSale #PersonalizedMedicine #HealthcareResearch #GeneticTesting #MedicalResearch #GeneticPrivacy #DNAAnalysis #DataSecurity #Chapter11Bankruptcy #GeneticInformation

Alabama attorney general warns 23andMe customers to delete accounts MOBILE, Ala. (WKRG) — Alabama Attorney General Steve Marshall is warning 23andMe customers to delete their accounts after the company filed for bankruptcy. The company collects and analyzes people's genetic codes. “Given the uncertainty surrounding 23andMe's bankruptcy, consumers should seriously consider deleting their accounts to protect their personal genetic data,” Marshall said. “Without clear assurances to [...]

WKRG News 5:Alabama News Beacon. #23andMe #GeneticPrivacy #DataProtection

23andMe bankruptcy filing sparks privacy fears as DNA data of millions goes up for sale
#23andMe #GeneticPrivacy #DataBreach
www.youtube.com/watch?v=uWt1...

What does 23andMe's collapse mean for customers' data? The genomic testing company says the way it stores data hasn't changed and any new buyers would have to follow the "applicable law" about security.

#genetics #geneticprivacy www.abc.net.au/news/2025-03...

🧬DNA Is a Data Asset: The 23andMe is in crisis. It's a genetic privacy reckoning. 23andMe is facing financial instability.
🔹 Who owns your DNA if the company collapses?
🔹 Who will protect you when your data is sold to a 3rd party?
#GeneticPrivacy #23andMe #ConsumerDataRights #CCPA

Attorney General Bonta Urgently Issues Consumer Alert for 23andMe Customers Californians have the right to direct the company to delete their genetic data OAKLAND — California Attorney General Rob Bonta today issued a consumer alert to customers of 23andMe, a genetic testing ...

CA Attorney General warns 23andMe users: Delete your data now! Company’s financial troubles put genetic info at risk.

oag.ca.gov/news/press-r...

#GeneticPrivacy #DataProtection #23andMe #ConsumerAlert #DNA #Genetics #PrivacyRights #DataSecurity #GeneticTesting #HealthTech

Senate Bill 1023 prohibits employment discrimination and genetic testing requirements Senate Bill 1023 bans discrimination and limits genetic testing in employment practices.

Maryland's Senate Bill 1023 is poised to revolutionize workplace equality by banning discrimination based on race, gender, and even genetic information—are we ready for this shift?

Click to read more!

#MD #WorkplaceEquality #GeneticPrivacy #DiscriminationProtection #MarylandWorkplace

THROWBACK THURSDAY!
How important is your genetic privacy? Sometimes, the right DNA kit & a few simple steps can identify #health traits like #cysticfibrosis in complete strangers. This post can help you can make decisions about your #geneticprivacy.
buff.ly/4hYJ9cA
#health #chromosomebrowser

Senate Bill 1023 prohibits genetic discrimination in employment practices Senate Bill 1023 bans employers from discriminating based on genetic information or tests.

Maryland's Senate Bill 1023 is making waves by banning genetic discrimination in the workplace, pushing for privacy and equity like never before.

Click to read more!

#MD #CitizenPortal #DiscriminationProtection #MarylandEmployment #WorkplaceEquity #GeneticPrivacy

House Bill 1007 protects genetic testing rights for insurance applicants House Bill 1007 prohibits insurance discrimination based on genetic test results effective October 2025.

Maryland's House Bill 1007 could revolutionize insurance by banning discrimination based on genetic testing, ensuring your DNA won’t dictate your coverage.

Click to read more!

#MD #GeneticPrivacy #ConsumerProtection #CitizenPortal #HealthEquity #MarylandInsurance

If we have no right to privacy in the DNA we leave in public, then genetic privacy does not exist for anyone. Discuss.

#DNA #privacy #geneticprivacy #FGG #FIGG #forensicgeneticgenealogy #4thAmendment #FourthAmendment

23andMe, die, denen Leute ihr genetisches Profil anvertraut haben, wurde "gehackt". Jetzt werden diese genetische Informationen verkauft, unter anderem 1 Millionen Daten zu Jüd*innen und hunderttausende zu Chines*innen.
#geneticprivacy
www.wired.com/story/23andm...