New GA4GH product establishes guidance to address genetic discrimination The GA4GH Regulatory & Ethics Work Stream has published a newly approved product: The Position Statement on Genetic Discrimination (GD). This Position statement outlines recommendations to monitor...

From @ga4gh.org | New #GA4GH product establishes guidance to address genetic discrimination | #GD #GeneticDiscrimination #Education #Genomics #Ethics #Law 🧬 🖥️ 🧪
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www.ga4gh.org/news_item/ne...

The ads that sell the sizzle of genetic trait discrimination One day this fall, I watched an electronic sign outside the Broadway-Lafayette subway station in Manhattan switch seamlessly between an ad for makeup and one promoting the website Pickyourbaby.com, which...

The ads that sell the sizzle of genetic trait discrimination #Science #Biology #Genetics #GeneticDiscrimination #Biotechnology #EthicsInScience

Questions about Newborn Genome Sequencing & Why I Refused It For My Baby: geneticfrontiers.substack.com/p/16-questio...

#GeneticDiscrimination #newborngenomesequencing #genomesequencing #genetictesting #geneticfrontiers

Defining and pursuing diversity in human genetic studies - Nature Genetics Calls for more diverse data in genetics studies typically fall short of offering further guidance. Here we summarize a policy framework from the Global Alliance for Genomics and Health designed to fil...

🧬 Lack of diversity in genetic research isn’t just a gap - it is exclusion. And that can lead to real-world discrimination in care and treatment.

🔗 More on this topic here → doi.org/10.1038/s415...
#Genomics #GeneticDiscrimination #InclusionInScience #GDO #DataEquity #IndigenousHealth #ELSI

Struggling DNA testing firm 23andMe to be bought for $256m It said new buyers Regeneron had committed to protect user data as part of the deal.

Two months ago, GDO experts clarified how genetic information could be used following 23andMe’s bankruptcy. Read more about what has happened since here: www.bbc.com/news/article...

#GeneticPrivacy #GeneticData #23andMe #DataSecurity #EthicsInTech #Biotech #GenomicGovernance #GeneticDiscrimination

🔍 What is genetic discrimination, and how does it affect our lives in Canada? In this short vid, GDO's Diya Uberoi & Abby Rud break it down—from legal gaps to action steps. A clear and compelling intro to your rights + genomics. 🎥
🔗 youtu.be/OqmOVRB41Y8
#GeneticDiscrimination #Bioethics #Canada

Leveraging Human Rights To Clarify The Risk Of Genetic Discrimination In Pediatric Oncology - Access ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.

Kids with rare cancers in Canada are being left out of genomics research due to fears of genetic discrimination, despite protective laws. We’re working to change that. All children deserve access.
🔗 www.accessforkidscancer.ca/projects/lev...
#HealthEquity #PediatricOncology #GeneticDiscrimination

Marines with Skin Condition Affecting Mostly Black Men Could Now Be Booted Under New Policy A new Marine Corps policy says troops with a genetic skin condition that can cause pain and scarring from shaving and mainly affects Black men can be separated if the health issue persists.

The new #MarineCorps policy could have discriminatory effects against #black service members, who disproportionately have this condition. #PFB #DressCode #GeneticDiscrimination #ableism #discrimination buff.ly/EJThemu

Advocates support Maryland House Bill 1007 against genetic discrimination in insurance House Bill 1007 aims to protect Marylanders from genetic discrimination in various insurance sectors.

Maryland's House Bill 1007 could be a game-changer for those facing hereditary health risks, eliminating fears of genetic discrimination in insurance and paving the way for lifesaving genetic testing.

Click to read more!

#MD #MarylandHealth #GeneticDiscrimination #PreventiveCare #HealthPrivacy

Diya Uberoi, Academic Associate of the Centre of Genomics and Policy (CGP) and Associate Director of the Genetic Discrimination Observatory (GDO), presented the GDO's most recent project on #GeneticDiscrimination in #pediatric #oncology at ACCESS-ACCES's Annual Conference 🩺 🧬
@dgenetique.bsky.social

Could Rising Access to Genetic Data Lead to Increased Genetic Discrimination? The growing accessibility of genetic data has revolutionized personalized healthcare, offering unprecedented opportunities to tailor treatments and improve outcomes. Yet, this progress raises a critical question: could the very tools designed to enhance care also lead to increased genetic discrimination? Question from our readers: Could Rising Access to Genetic Data Lead to Increased Genetic Discrimination? The demand for personalized healthcare is skyrocketing, and by 2025, it is projected to become one of the fastest-growing sectors in medicine. Personalized care, which tailors medical treatments to an individual's unique genetic makeup, lifestyle, and environment, holds immense promise for improving outcomes and reducing healthcare inefficiencies.

Institutions and companies handling genetic data must adhere to ethical standards, ensuring individuals' genetic information is used solely for improving care and not for discriminatory practices. #GeneticDiscrimination #YAWA