Three days in Brussels to help advance the European Declaration on Rare and Complex Diseases 👉 ERDERA Coordinator Daria Julkowska joined the HLM Rare 2025 in Brussels. Read the full recap of this important event 🔗 https://loom.ly/JeB52Fc #RareDiseases #ERDERA #HLMRare

[Image description: Dominique Sturtz, Chair of the ERN-EYE EPAG, Avril Daly, CEO RI and Prof. Helene Dollfus, Coordinator, @erneyenetwork attend the High Level Meeting (HLM) on Rare Disease Policy in Brussels on December 10th.]

Today, our CEO @avrilbdaly.bsky.social, as President of @eurordis.bsky.social, is joining leaders across Europe to push for a stronger, more connected research & innovation ecosystem for rare diseases. Key discussions are highlighting the power of ERNs. #HLMRare #RareDiseases #ERN_EYE #Innovation