Aspects of "Population Data Science":
- data use for positive impact on citizens & society;
- data from multiple sources;
- population-level insights;
- safe, privacysensitive & ethical infrastructure
(@docschull presentation)
#isoqol18 #epidemiology
Donna Rowen presents work on the HASMID instrument & how to expand the scope of a utility instrument beyond "health".
#isoqol18 #diabetes #selfmanagement #hrqol #openaccess
Madeleine King presents work on multiattribute utility in #cancer measurement.
Building on earlier work:
New results across 8 countries show that mobility loss had the greatest utility decrement:
#isoqol18
When you are taking conference notes and instead of people's names only their twitter handles come to your mind...
#conference #isoqol18 #livingdigital
Is there an obligation to consent to data use for medical research?
asks @docschull
Some of the relevant arguments are for example discussed in this piece from an #epidemiology perspective:
@b_mittelstadt
#isoqol18 #livingdigital
The @ICESOntario has a number of resources on their webpage, including the report on the centre's thinking on data use and it's stewardship obligations:
@docschull
#ISOQOL18 #ethics #informedconsent #datause
An important point on what defines a challenge in data analysis by @docschull:
#bigdata is not big -- what makes it #bigdata (in the sense of an analytical challenge) is when it is unstructured.
#isoqol18
Researchers interested in #PRO, #feedback into clinical processes and #complexity might also be interested in having a look at @tkaiser_science's "dyncomp" R package.
Preprint:
Package:
#isoqol18 #psychotherapyresearch
Emma Uprichard: "What is #bigdata"?
"I am unimpressed by this term"
What she finds interesting is: these data do have a time dimension.
#isoqol18
Grateful for Elizabeth Murray referencing this paper on #selfmanagement
& highlighting 👇this👇
It sounds so correct.
But parts read provocatively today.
Depends on which words you put in italics (none in the original).
#chronicconditions #ISOQOL18
Interested in #itembanking?
Come to our panel on "Challenges in itembanking - future perspectives on development and application"!
#isoqol18 #psychometrics #imputation
Adrian Levitsky presents work on What are early preditive symptoms of #lungcancer?
Orthogonal projections to latent structures identifies several predictors.
Predictive power promising (AUC at .70).
#PEXLC #ISOQOL18
When we see increases in #mentalhealth problems in children & young people & that there is some evidence that these technologies may increase risk for mental health problems -- how do we feel about promoting their use?
asks @skye_barbic
#isoqol18 #cypmh
Murray: As soon as interventions, apps etc enter a healthcare system, checks need to be in place that show that the intervention/tool/app is effective AND #costeffective including potential opportunity costs.
#isoqol18 #rct #trials #evaluation #healtheconomics
Great question by @RonDHays on #selfmonitoring work:
What are the underlying theories that are applied to design these tools & interventions?
As much as values & society shape #reappropriation & use of tools, our theories shape what we actually look at!
#isoqol18 #livingdigital
Thank you to Elizabeth Murray & @DrEmmaRich for their great reflections on #selfmonitoring. The technologies are there. Maybe it is time #qol researchers & practitioners re-appropriate their use & help with #sensemaking?
#isoqol18 #livingdigital
#Kickoff #isoqol18
Several jokes about the early start have been made.
But nearly 12hrs of #QOL-packed program need to be tucked away somewhere in the few hours of the day! 😄💪🤓
Is #ISOQOL18 your first? Are you wondering what @ISOQOL is about?
Or are you generally just interested?
#QLR is one of ISOQOL's journals & the following six articles made the #Top10 downloads in 2016 & 2017.
@ISOQOL #hrqol #qol #healtheconomics
👇In no particular order👇
New #QLR issue send off to press featuring a number of #populationbased studies, e.g.:
What moderates the relationship btw age & life satisfaction? (across 133 countries!)
#isoqol #hrqol #epidemiology #multilevel #isoqol18
When registering for #ISOQOL18 do not forget about the pre-conference workshops:
For example the one about strategies for #psychometric analyses of #multilevel data 😉🤓
#conference #dublin
