Photo of me at infusion center with IV tube from IV machine through my sleeve to the port in my arm

Started off warm, but so cold in here now! Good thing I've got my #BeWell sherpa #IVhoodie! I start w/ my arms out through the zip sleeves, but now I'm fully bundled up -- just open enough for the #IV line to come out from the #port in my arm.
🦋
#ChronicIllness #infusion #SpoonieSky
🧵 continues...

Photo of me at infusion center with arm exposed to show port accessed (& bandaged); smaller photo insert shows nurse's gloves hands drawing blood from my arm

It's #InfusionDay!
All went smoothly, from #port access to blood draw, hydration to #IVIG (& more hydration).

So comfy with my fuzzy #IVhoodie; passing the time with #Wicked movie 💚🧹 & #HellsKitchen cast recording 🎶
~🦋
#ChronicIllness #infusion #sarcoidosis #SmallFiberNeuropathy #SpoonieSky

Collage of photos showing me with all the clothes & accessories described

My favorite fuzzy boots, which match the pants, which match the shirt, which matches my awesome new super comfy #IVhoodie, which matches the mask, which matches the stacked glasses, which match the watch & all the jewelry!
~🦋
#InfusionInStyle #ALEXandANI #WearPair #SpoonieSky #AlwaysCoordinated😘

Repping my #NYYankees today w/ glasses, mask, shirt, & bracelet. And of course I've got accessories to match:
#IVhoodie, jewelry, shoes, hair clip - and even my giant coffee cup!🧵
~🦋
#infusion #dysautonomia #neuropathy #RareDisease #sarcoidosis #SmallFiberNeuropathy #BeWell #AlwaysCoordinated😘
3/3

Just finished my pre- hydration, and the #IVIG is flowing now.

I am sooooooo tired - hoping I can take a nap while I’m here.

It’s been cold the past few weeks, so time to break out the #IVhoodie (with zippers in the sleeves so they can access my port). I love this thing, and need to get more!