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Lovely to meet so many families, advocates, healthcare professionals, researchers, & students 🙏

Kudos to Anne Lawlor and Angela Carey for bringing this event to Waterford

#IndividuallyRareCollectivelyCommon #1in17

@hselive.bsky.social

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“Colorful awareness poster for Rare Disease Day, dated February 28, 2025. The poster features the phrase ‘I Love Someone Rare’ in large, bold, pink and purple text, followed by ‘More Than You Can Imagine’ in white. The background has a watercolor-like blend of blue, purple, and pink. In the top left corner, there is a pink banner with ‘#RARE DISEASE DAY’ written in white. In the top right, there is the Rare Disease Day logo, a multicolored handprint with an eye in the center. Below the text, there are four individuals of diverse backgrounds, including a young girl with braids, a smiling person with short hair and painted hands, a young man in a white t-shirt, and a child and woman engaged in a playful face-painting activity.”

“Colorful awareness poster for Rare Disease Day, dated February 28, 2025. The poster features the phrase ‘I Love Someone Rare’ in large, bold, pink and purple text, followed by ‘More Than You Can Imagine’ in white. The background has a watercolor-like blend of blue, purple, and pink. In the top left corner, there is a pink banner with ‘#RARE DISEASE DAY’ written in white. In the top right, there is the Rare Disease Day logo, a multicolored handprint with an eye in the center. Below the text, there are four individuals of diverse backgrounds, including a young girl with braids, a smiling person with short hair and painted hands, a young man in a white t-shirt, and a child and woman engaged in a playful face-painting activity.”

I ❤️ Someone Rare

💡Did you know that rare conditions are not really rare… 1 in 17 people in Ireland are living with a rare condition.

#RareDiseaseDay2025 #IndividuallyRareCollectivelyCommon #RareCommunity

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#RareDiseaseDay2025 #IndividuallyRareCollectivelyCommon #RareCommunity #300MillionReasonsWhy #RemoveTheBarriers #RareDiseaseMonth #MultiModalCommunication

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