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ME/CFS Research Foundation ME/CFS Research Foundation is a non-profit organization dedicated to advancing research and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome.

⭐Alle forsker godkjente presentasjoner, samt posterpresentasjoner fra the #IntMECFSConference2025
“Understand, Diagnose, Treat”, kan du finne på hjemmesiden med oppsummeringer

events.mecfs-research.org/en/events/co...

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🔔 Erinnerung: Die Vorträge der #IntMECFSConference2025 „Understand, Diagnose, Treat“ sind jetzt online! 🚀 Am 12.–13. Mai präsentierten Forschende aus Europa, USA, Japan & Israel neueste Ergebnisse. Alle freigegebenen Videos stehen on demand bereit 🔗 events.mecfs-research.org/de/events/co...

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bleibender Immunschwäche nach C19 sowie
Cai et al. (DOI: 10.1016/S1473-3099(24)00831-4) bzgl. postinfektiöser Veränderungen der Brückenregion verwiesen. Außerdem wurde die zu diesem Zeitpunkt allerdings schon abgehaltene #IntMECFSConference2025 genannt. Immerhin.

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My take on the #IntMECFSConference2025: some progress in understanding the disease and developing biomarkers. Nothing revolutionary, more results on immunity, autoimmunity, endothelium, coagulation, mitochondria, and muscle cells.

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#IntMECFSConference2025
Klaus Wirth‘s disease concept and therapeutic extrapolations never fail to amaze.

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#IntMECFSConference2025
At present, IMHO it is not possible to make reliable statements regarding the effectiveness of immunoadsorption (IA) versus apheresis procedures, simply because we lack the necessary data as a basis for evaluation.
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#IntMECFSConference2025
Two important takeaways on the topic of immune absorption or apheresis is, that it most likely only works in conjunction with B-cell depletion and that severely and very severely affected patients are at high risk of deterioration.

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#IntMECFSConference2025

A rather evasive discussion regarding the off-label medication list in Germany IMHO. #BfArM

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#IntMECFSConference2025

Is Vortioxetine available in Germany all of a sudden #BfArM ?

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#IntMECFSConference2025
Go @neurostingl.bsky.social !

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#IntMECFSConference2025

Go @kathrynhoffmann.bsky.social !

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"The most expensive thing we can do is not fund research and trials."

Dr. Scheibenbogen at the #IntMECFSConference2025
about the burden of cost of #MECFS on society.
#MEAwarenessDay

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