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Text in a speech bubble, “What does deafblindness mean to you?”

Text in a speech bubble, “What does deafblindness mean to you?”

Two people are sitting on a pallet on a beach. Over their heads are the following texts in speech bubble, “Does it mean living in a world with no sight + no sound?”, “Wrong! It’s a spectrum!”, “Many individuals with deafblindness have some sight + sound.”

Two people are sitting on a pallet on a beach. Over their heads are the following texts in speech bubble, “Does it mean living in a world with no sight + no sound?”, “Wrong! It’s a spectrum!”, “Many individuals with deafblindness have some sight + sound.”

Two people are sitting on a pallet on a beach. Over their heads is the following text in a speech bubble, “Some are born with loss of both senses.  Others, like those with Usher syndrome experience a progressive loss slowly during their lifetime potentially leading to deafblindness in later stages.”

Two people are sitting on a pallet on a beach. Over their heads is the following text in a speech bubble, “Some are born with loss of both senses. Others, like those with Usher syndrome experience a progressive loss slowly during their lifetime potentially leading to deafblindness in later stages.”

What does deafblindness mean to you?

It may not be what you think!

#UsherSyndrome #RareDisease #Medics #DBAW2025 #SpeirGorm #LearnAboutUSH #CureUSH

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 The text reads "Raising More Awareness: New Awareness Packs Launched for Healthcare Providers". A small circular campaign logo featuring an eye, ear, and the phrase "Are you Usher Aware?" is placed above the text, along with the hashtag #LearnAboutUSH. The background has varying green and yellow patterns.

The text reads "Raising More Awareness: New Awareness Packs Launched for Healthcare Providers". A small circular campaign logo featuring an eye, ear, and the phrase "Are you Usher Aware?" is placed above the text, along with the hashtag #LearnAboutUSH. The background has varying green and yellow patterns.

In 2024, we distributed USH Awareness Packs to healthcare providers nationwide, spreading understanding of Usher syndrome and dual-sensory loss. These resources will help to improve patient experiences.

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#UsherSyndrome #LearnAboutUSH #AreYouUsherAware

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