Chicago, you've done it again! 💗
The Windy City dressed in pink to honor TSF in recognition of #NMOSD and #MOGAD Awareness Months!
We can't wait to see you at #AANAM in Chicago in a few weeks!
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#NMOSD
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The Combat Radio Event for children battling #NMOSD and cancer --take a look and support the cause at www.acombatradiochristmascarol.com www.youtube.com/watch?v=Vo9n...
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Terry Clark, TSF Ambassador for Massachusetts and NMOSD warrior, has once again secured a proclamation declaring March 2026 as #NMOSD Awareness Month.
In recognition of this effort, Governor Maura Healey met with Terry to learn more about #neuromyelitisoptica.
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An analysis of #Satralizumab safety revealed increased infection risk and highlighted vulnerable subgroups of patients with neuromyelitis optica spectrum disorder (#NMOSD).
Read more: https://bit.ly/41sEM2U
#RareDisease #MedSky #NeuroSky #Neurology
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⚠️Women with #NMOSD can have a severe and irreversible post-partum relapse of the disease. However, immunosuppressant medications can pose risk to pregnancy and may be contraindicated during breastfeeding.
🤔How to best manage these patients and minimize risks?
journals.sagepub.com/doi/10.1177/...
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A normal morning turned life upside down - sudden symptoms led to a rare #NMOSD diagnosis, fear, and uncertainty. Marissa’s story is a powerful reminder of how quickly everything can change, and the strength it takes to face the unknown.
www.sumairafoundation.org/marissas-nmo...
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Support #NMOSD research, save a life. Visit the Combat Radio Charity Shop for some signed posters, props and get involved. #starwars #disney #horror etc... www.acombatradiochristmascarol.com
www.youtube.com/shorts/r3Fv0...
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Taylor Macey joins TSF as Director of Patient Engagement.
Diagnosed with #NMOSD in 2019, she’s dedicated to amplifying patient voices, leading programs and bringing hope to the rare neuroimmune community! 🩷🧡💛
www.sumairafoundation.org/welcome-tayl...
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Support #NMOSD research, save a life! Visit the #combatradio charity shop at www.acombatradiochristmascarol.com for some signed props, posters etc... and make a difference!
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Support #NMOSD research --save a life. Visit the Combat Radio Charity Shop! www.acombatradiochristmascarol.com
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Signed limited-edition REVENGE of the JEDI posters in the Combat Radio charity shop (for children battling #NMOSD) --it comes with a raffle ticket for our March give-away so visit www.acombatradiochristmascarol.com and get after it!
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This report presents a rare case of seropositive neuromyelitis optica spectrum disorder (NMOSD) in an 87-year-old patient.
bit.ly/cjo_seroposi...
#Ophthalmology #NeuroOphthalmalogy #NMOSD
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Een tiental telefoons staat op trillen in beide benen. Stop ermee, mensen. Mij. Niet. Bellen!
#TwitchesAndTremors #NMOSD
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🇮🇹 La nostra prima illuminazione per celebrare i mesi di sensibilizzazione su #NMOSD e #MOGAD è lo Sferisterio, situato nella Città di Macerata.
Siamo grati per il sostegno nell’illuminare l’oscurità delle nostre malattie rare. www.comune.macerata.it/novita/lo-sf...
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March is #NMOSD Awareness Month 🧠
In this NeurologyLive® Q&A, Benjamin Greenberg, MD, discusses recently approved therapies, the importance of early diagnosis, and emerging research—including CAR-T approaches that may reshape treatment.
Read 👉 www.neurologylive.com/view/nmosd-a...
#Neurology
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Congrats to our bro/Staff Sgt Fred Garcia, seen here holding down the red carpet with the #LA #Rams Cheerleaders at our 'Christmas Carol' charity event last November. He just wrapped up his tour with the #USMC and is out! Proud this hero is working with us....
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#combatradio #NMOSD
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#HappyBirthday to Mr Floats, seen here holding down the red carpet with the #LA #Rams Cheerleaders at our 'Christmas Carol' event! --You may see an evil clown here, but would you believe he's a major player in helping children battling #NMOSD and cancer behind-the scenes! All Class. Happy Birthday!
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New to #NMOSD or looking for trusted information?
This guide shares key FAQs on symptoms, diagnosis and treatment. While rare, more specialists and researchers worldwide are working to improve care and quality of life for people living with NMOSD.
www.sumairafoundation.org/what-to-know...
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In patients with aquaporin-4 immunoglobulin G (AQP4-IgG) antibody-positive neuromyelitis optica spectrum disorder (#NMOSD), age at disease onset does not significantly influence relapse risk. Study in Neurology (@aanmember.bsky.social)
Read more: https://bit.ly/4lrjcVM
#RareDisease #Neurology
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New research sheds light on double seronegative #NMOSD, a rare form where AQP4 and MOG antibodies aren’t detected. A multicenter study shows relapses still occur and identifies factors that may help predict future attacks—key to preventing lasting damage.
www.sciencedirect.com/science/arti...
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Nog helemaal opgefokt en AAN van het geweld gisteren en de verloren slaap vanochtend komt nou de revalidátiearts weer aan met MS, nog erachteraan mompelend dat #NMOSD een variant is.
Nou nee! Als ik een aanval (flare, schub, relapse etc.) krijg, dan ben ik gezien als ik een MS-behandeling krijg. 🖕
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✨TSF Ambassador Spotlight: Where Rarity Shines!
Meet Sheila, TSF’s Cali Ambassador, #NMOSD advocate, entrepreneur, artist & author. Inspired by her journey and Ugandan roots, her children’s book Lion’s Water follows Akiiki, who finds courage within. 🦁
sheilangonzihackbarth.com/bookstore
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🇫🇷 Découvrez « NMO Bonjour », notre court-métrage avec Bérengère. Mère vivant avec la #NMOSD depuis plus de 20 ans, elle partage avec sa fille Emma une histoire de résilience et d’amour.
🎥 Finaliste du Festival du film de WHO 2023
youtu.be/S61aOuBWf4s?...
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March is #NMO Awareness Month! 🩷🧡💛
Did you know ~95% of rare diseases lack approved therapies?
Fortunately, #NMOSD is among the ~5% that have treatment options, with 4 approved therapies today.
Learn more: www.sumairafoundation.org/awareness/th...
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Line graphs show EBNA-1 peptide antibody titers over time in patients. Graph A compares MS and healthy controls. Graph B compares MS, MS: RIS, MS: CIS, MS: MOG-IgG 20@1, MOGAD: MOG-IgG 160@2, MOGAD: MOG-IgG≥640@3, NMOSD, OIND, and OND.
Persistently high Epstein-Barr nuclear antigen 1 antibody titers distinguished #MultipleSclerosis from #MOGAD and #NMOSD, supporting use as a noninvasive diagnostic biomarker. ja.ma/4svV4U9
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On March 8 we celebrate International Women’s Day!
Did you know
🦄 Autoimmune diseases affect women 2:1
🦄 Rare diseases are 10x more likely in women
🦄 #MOGAD shows no female predominance
🦄 Women are 9x more likely to have #NMOSD
Grateful for the women in our community. 🩷🧡💛
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Neuropathic pain is a highly prevalent yet insufficiently managed complication of neuromyelitis optica spectrum disorder (#NMOSD), according to findings of a recent meta-analysis published in Journal of Clinical Medicine.
Read more: https://bit.ly/47jDOt1
#RareDisease #NeuropathicPain #MedSky
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