HOV’s Supportive Care for Dementia (SCD) Program Study of first 3 years • Reduction in aggression, agitation, calling out, wandering, insomnia (NPI) (p<.001) • Reduction in caregiver stress (ZBI) (p<.001) • 48% reduction in hospitalizations during program, and 28% reduction after • 25% transition directly from SCD to HOV hospice

Last up is Maribeth Gallagher, DNP from Hospice of the Valley, presenting on Dementia-Capable Hospice and Palliative Care.

They have a Supportive Care for Dementia (SCD) program that has shown a large impact on patients, caregivers and staff.

#HAPC26

#Dementia #NeuroPalliative #PalliativeCare

Picture of a plate with pureed foods that have been shape molded to resemble to food it is. From the website https://pureefoodmolds.com/

A tip from this session that I haven't heard of are shaping molds that can make pureed food look like the food it is supposed to be. Like a pile of peas.

If anyone has experience with this, I would like to hear how it went!

pureefoodmolds.com

#NeuroPalliative #HAPC26 #HAPC #Palliative #Dysphagia

Next session: Lean on Me: Rehabilitation & Durable Medical Equipment in Serious Neurologic Illness with Grace Suttle & Rita Crooms.

Cognition and communication are often hidden drivers of distress in #neuropalliative cases. They impact loss of autonomy, and increased caregiver burden.

#hapc26

#PalliativeCare SW can help with helping patients and caregivers understand access to Medicaid, publicly funded Home Care Programs, and Disease-specific non-profits like ALS Network, Parkinson's Foundation, CurePSP, The Epilepsy Foundation

#hapc26 #neuropalliative #PalliativeCare #SocialWork

From a psychosocial perspective, recognize that neurologic diseases often come with loss of control, funcitoning independence & predictability. In #neuropalliative clinics recognize that rate of progression can be highly variable.

Recognize the role of the caregiver.

#hapc26 #hapc #PalliativeCare

Moving onto seizures -

Don't reflexively scheule benzos at EOL when oral route is threatened. If prognosis i weeks or more alertness matters.

There were many other great slides but I did not get a picture.

#hapc26 #neuropalliative #PalliativeCare

In PD, consider Consider a 3-month supply of non-hospice formulary medications before hospice enrollment.

If needing to wean dopaminergic therapies at EOL, do so slowly when possible to avoid NLMS

#hapc26 #neuropalliative #PalliativeCare

Look for OFF symptoms like anxiety, dyspnea, pain and diaphoresis, which may occur when Dopamine therapy is not lasting long enough.

Remember to avoid dopamine recpetor antagonists (Wondering to add it as an allergy med/contraindicated)

#hapc26 #neuropalliative #PalliativeCare

#PallaitiveCare can help in Parkinson's disease. It is more than just a movement disorder.

Fatigue, pain, constipation, insomnia and anxiety. Marjority of Parkinson's patients report at least one uncontrolled symptom.

#hapc26 #neuropalliative #PalliativeCare

I got here a bit late so I missed the ALS section and we have already moved onto Parkinson's.

#hapc26 #neuropalliative #PalliativeCare

Afternoon sessions beginning - I'm attending "Calm Your Nerves: Clinical Tips from Neuropalliative Experts to ease Your Neurophobia"

It is only 25mins, but honestly could be an hour session or half-day pre-con.

#HAPC26 #Neuropalliative

What are the perceptions of clinicians referring to a novel pediatric #neuropalliative clinic? In the latest issue of #pedneuro, Lin et al explores these perceptions.

Read here: buff.ly/v2nBte7

Honored to have had the opportunity to speak at the 2nd Alpe Adria Update on Movement Disorders in beautiful Ljubjana last week, where I shared our work on #neuropalliative care & its essential role in improving the quality of life for patients and families facing #Parkinsonism.

A great conceptual model on bereaved dementia caregiving, proposed by Dr Zach Baker, of Arizona State University. Presenting at #INPCS #neuropalliative

Important advances in neuropalliative care are informed by people with lived experience.
Dr Benzi Kluger kicking off the 5th #INPCS meeting. #neuropalliative

💡Hot off the press: thrilled to share our latest article on #neuropalliative care in #Parkinson's disease, crafted to be a useful tool for clinicians, patients, and their families alike, is just out in @springernature.com ➡️
link.springer.com/article/10.1...

Such an honor to have contributed to this very important JAMA Neurology (@jama.com) special communication on the critical needs of #neuropalliative care research, among many dedicated colleagues. 🙏 A must read for all interested in #neuropal and #Neurology ! ➡️ ja.ma/4hlgKNL

A full day of patient and caregiver visits followed by clinical bioethics class. I’m tired and happy. Husband made steak salad for dinner. I made Manhattans
#chaplaincy #neuropalliative #bioethics #marriage

I have the next six days off. Deep breath. So needed. Such intensity today. Integration with #kap patient and doctor, VSED and MAID discussions, hospice preparation, DV and safety planning. #neuropalliative #hapc #chaplaincy thank goodness for transdisciplinary support, and cookies.

Merci à la #SFGG et au Prof. Verny (APHP) pour leur invitation aux 44e Journées Annuelles de la Société Française de #Gériatrie et Gérontologie. L'occasion de présenter nos travaux sur l'approche #neuropalliative de la maladie de #Parkinson à la communauté gériatrique !