The future of TAPS research is promising, with ongoing studies improving diagnosis, treatment, and outcomes. As we near 20 years since TAPS was named, we push for greater awareness. If you're researching monochorionic twins, let’s connect.. #InternationalTAPSDay #TAPSAwareness #NotJustTTTS

Families facing multiple pregnancies, especially with complications or loss, need access to quality, evidence-based peer support. Healthcare providers must connect families to trusted networks. Read our position paper: sbee.link/vaud4w9m8g
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS

The need to update international guidelines for twins is critical. Evolving guidelines and improving screening methods are key for better outcomes. Read about our project with Prof. Asma Khalil here: sbee.link/67xce4kjbt
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS

In TAPS, decisions should be based on gestation, severity, evidence, and importantly, the parents’ wishes. With so much still unknown, shared decision-making between healthcare providers and parents is essential. Learn more: sbee.link/xjdcawh48u
#TAPSAwareness #NotJustTTTS

As we close today, we invite families to share the names of twins and triplets lost to all twin complications in the comments. We honor their memory. Thank you to all the medical professionals, caregivers, and our partners Loss Books, The Skye High Foundation, and Footprints Baby Loss. #NotJustTTTS

Sharon Darke, co-founder of Footprints Baby Loss, shares her experience of grieving a lost twin while caring for a surviving one. She talks about the need to honor both children and the importance of support for families in similar situations. youtube.com/shorts/fgDhnN3I... #NotJustTTTS

Pregnancy after a TTTS and TAPS diagnosis is a rollercoaster of impossible choices. At 24 weeks, we had to make the hardest decision. Letting Rosie go was the only way to give Poppy a chance. Read our story: sbee.link/w8qexukjbh
#NotJustTTTS

Seven years ago, Sofia and Olivia were born after a routine pregnancy. After two days, Olivia passed away. Today, Sofia shares what it’s like growing up as a twinless twin and how her family keeps Olivia’s memory alive. Watch: sbee.link/xnubqe83pm
#NotJustTTTS

We celebrate progress in TAPS screening. Prof. Asma Khalil shares how updated guidelines now recommend MCA-PSV screening for all monochorionic twins. Watch the video to learn more: sbee.link/dek9tq78xa
#NotJustTTTS #ITD2025 #InternationalTAPSDay

1 in 8 spontaneous TAPS donors may develop Auditory Neuropathy Spectrum Disorder (ANSD). Early detection through NICU screenings is key. Long-term follow-up is critical for monitoring speech, cognitive, and motor challenges. More: sbee.link/d4gu9fkmxq
#TAPSTwins #NotJustTTTS

Dr. Jeanine van Klink researches the long-term neurodevelopmental impact of TAPS. Survivors face higher risks of cognitive delays, speech and motor difficulties, and learning and behavioral issues.Watch the video: youtube.com/shorts/KPEWe4Ur...
#TAPSDAY #ITD2025 #NotJustTTTS

TAPS twins can climb mountains! Filip and Dumitru (R) were born at 29 weeks, diagnosed with spontaneous TAPS at 26 weeks, and treated with laser surgery. He has cerebral palsy and developmental delays due to a stroke in utero but continues to make progress. #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS

Post-laser TAPS and spontaneous TAPS differ in long-term effects. Donor twins in spontaneous TAPS face higher risks of NDI and cognitive delays. Long-term follow-up is key for proper development. Learn more at www.tapssupport.com/the-lon... #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS

Neonatologists play a critical role in managing TAPS. Donor twins are at increased risk of lactate acidosis, hypoglycemia, and respiratory complications like PPHN.
Study: sbee.link/vxrnktdq84
Study details: sbee.link/tgw9d73mac
#NotJustTTTS #NeoSky

In this video, Prof. Enrico Lopriore explains TAPS, a rare condition affecting monochorionic twins. TAPS is often diagnosed at birth, and neonatologists are crucial in managing it through early detection and care. #NotJustTTTS #NeoSky

More: sbee.link/t67bdymujv

Abby’s story: We couldn’t confirm, but our MFM later said the girls likely had TAPS. Diagnosed with sIUGR, inpatient at 26 weeks, delivered at 28+4. 92 days in NICU. Grateful for the community for helping me become an advocate. #TAPSTwins #InternationalTAPSDay #TAPSDAY #ITD2025 #NotJustTTTS

Neonatologists play a crucial role in identifying and managing TAPS in the NICU. Unlike TTTS, TAPS requires different care. Watch for complications like pulmonary hypertension and monitor hemoglobin/reticulocyte counts. More info: sbee.link/ucpetgqj9b
#NotJustTTTS #NeoSky

The best treatment for TAPS is still under investigation. The Leiden University Medical Center (The Netherlands) has launched the TAPS Trial, comparing laser treatment with standard care.
Learn more: en.thetapstrial.com/informa...
#NotJustTTTS #TAPS #TAPSTwins

Meet Dr. Femke Slaghekke, a maternal fetal medicine specialist at Leiden University Medical Center. In this video, Dr. Slaghekke explains the treatment options for TAPS twins. Watch here: sbee.link/nf7683ewqv
#NotJustTTTS #TAPS #TAPSTwins

Marni from the Gold Coast had in utero transfusions (IUT) after her twins were diagnosed with TAPS. Thanks to early detection and an incredible medical team, Poppy and Billie are now healthy little girls.
Watch her story: youtu.be/9-1zcvMRGv8?si=Yct...
#NotJustTTTS #TAPSTwins #TAPSDAY

How do you treat TAPS? Options include expectant management, the Solomon laser technique, IUT, early delivery, selective reduction, and post-birth treatment. Treatment should be tailored to each case. More: sbee.link/37h9yqrueb
#NotJustTTTS #TAPS #TAPSTwins

Proper screening and accurate diagnosis lead to better outcomes for twins with TAPS.
❤️ Use Delta MCA-PSV for staging
🤍 Postnatal checks matter
❤️ Flip the placenta and check for color differences
More info: sbee.link/xnv9peraum
#NotJustTTTS #ITD2025 #InternationalTAPSDay

Diagnosing TAPS is not as simple as checking fluid levels like TTTS. Dr. Femke Slaghekke explains why MCA-PSV Doppler scans are essential for early detection. If you are expecting monochorionic twins, make sure you are getting the right scans. Watch here: youtube.com/shorts/sSB8v7AZaYM
#NotJustTTTS

Shanna's Story: At 12 weeks, we saw the girls growing at different rates. Doctors debated between TTTS and TAPS: ultimately, it was both. At 28 weeks, they were born, one red, one white. Bella was small but mighty. She passed at three days old. Scarlett turns three this March. #NotJustTTTS

TAPS is often missed because doctors aren’t looking for it. It doesn’t cause fluid imbalances like TTTS, so MCA Dopplers are the only way to detect it before birth. PS. Grab our TAPS pocket guides: sbee.link/bcvkrdpmt4
#NotJustTTTS

What a day! International TAPS Day is ending, but the work isn’t over. TAPS isn’t just a mild form of TTTS,it’s a different disease with unique risks. Watch this video from Dr. Ramen Chmait showing TAPS twins in utero. Learn more: sbee.link/kj8mbaftv4
#NotJustTTTS

Recognizing TAPS screening in monochorionic twins is a major step, but the real work begins now. As Dr. Jena Miller explains, collaboration is key to optimizing treatment and improving outcomes: sbee.link/kuv4ahn6te
#InternationalTAPSDay #TAPSDay #ITD2025 #NotJustTTTS

Prof. Asma Khalil shares what’s next. Guidelines now recommend MCA-PSV monitoring for TAPS, but awareness is still lacking. Parents need information, professionals need education, and research needs support.
Watch here: sbee.link/6qvxpmyfru
#NotJustTTTS #ITD2025 #InternationalTAPSDay

Emilie and Mathilde were born in 2013 with stage 3 TAPS. Now 11, they are sharing what it is like to grow up with it.. Their message is clear. TAPS needs to be taken seriously.

Watch here: youtube.com/shorts/pwvjPRQjBdc
#InternationalTAPSDay #NotJustTTTS

Thank you to Dr. Femke Slaghekke for setting the record straight: TAPS and TTTS are not the same. Different causes, diagnoses, treatments, and outcomes mean awareness is critical. Watch the video to learn more: sbee.link/bgnck7tqhj
#notJustTTTS #InternationalTAPSDay