What's going on here? 🎬Dr Rosemary Hollick is under the lights filming an interview as part of the key outputs from the PACFiND study.

Full details will be revealed soon – watch this space! 👀

Find out more: lnkd.in/eepN4Rmw

#Fibromyalgia #HealthcareResearch #PatientCentredCare #PACFiND

Shake-up of services needed to ease fibromyalgia pain Epi Group's Patient-centred Care for Fibromyalgia: New pathway Design (PACFiND) analysis of the state of care in the UK for fibromyalgia patients identifies multiple failings of current systems, and set to publish practical guidance to improve care

📺 Did you spot us on BBC Scotland last week? Our PACFiND study shows fibromyalgia patients face years-long waits & a revolving door of tests. We need better, earlier diagnosis & holistic care 💪

Read more at:
www.abdn.ac.uk/iahs/academi...

#Fibromyalgia #PACFiND

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PACFiND highlights big gaps in fibromyalgia care. 🏥
People face long waits, inconsistent diagnosis, and a “revolving door” of referrals. Patients want early diagnosis, specialist input, shorter waits & physio.
More: lnkd.in/eZXHzTwg

#PACFiND #Fibromyalgia

Highlighting #PainAwarenessMonth2025 with the PACFiND study—transforming care for people living with fibromyalgia. 🌟

PACFiND is developing a patient-centred toolkit for more effective, compassionate fibromyalgia care.

#PainAwarenessMonth #PACFiND #Fibromyalgia

‘A little bit of support really, that’s all I was looking for’ A qualitative study of the biographical disruption of fibromyalgia at work. Fibromyalgia is a chronic condition which can have a detrimental impact on a person’s interaction with work. Biographical disruption is a lens through…

💬 “A little bit of support really, that’s all I was looking for.”

🧠 New #PACFiND study explores how #fibromyalgia disrupts #work & #identity

Led by Martin Stevens, @aberdeenepi.bsky.social & Dr Hollick
🔗 www.sciencedirect.com/science/arti...

Amazing to see our team presenting at #BPSASM2025!👏

📍Prof Macfarlane @aberdeenepi.bsky.social shared our work on Chronic High Impact Pain #CHIPP 🗣️
📍Dr Hollick spoke on designing pain care as part of #PACFiND & #RHEUMAPS 🏥
📍Nabeeha Attique presented on pain policy across 4 countries 🌍

Mapping the Social Organisation of Neglect in the Case of Fibromyalgia: Using Smith's Sociology for People to Inform a Systems‐Focused Literature Review Fibromyalgia is a syndrome characterised by persistent unexplained pain and fatigue. People with fibromyalgia report receiving little support to manage symptoms, difficult interactions with healthcar...

📰 Research from the standpoint of people with #fibromyalgia

Caroline Cupit & colleagues at @ox.ac.uk have published a systems-focused literature review ahead of their work on the #PACFiND project, led by our team at @uniofaberdeen.bsky.social

🔗 onlinelibrary.wiley.com/doi/10.1111/...

Impactful Fibromyalgia research 🎯

The #PACFiND study looked at pathways to patient-centred care for people living with #fibromyalgia. The team of #RMD researchers and #patient partners are building a #toolkit to tailor key components of care for service provider 🏥 and patients👨‍👩‍👧‍👦
youtu.be/VaVjzmPqJGM

PAtient-centred Care for Fibromyalgia: New pathway Design (PACFiND) | The Institute of Applied Health Sciences | The University of Aberdeen

🔹 No existing model of care for #fibromyalgia covers the full patient journey & ongoing specialist care offers no clear benefit over primary care.
🔹 People who are undiagnosed report similar symptoms but better healthcare experiences than those with a diagnosis.
#PACFiND tinyurl.com/42nsem4y

📊 The #PACFiND study shows how data-driven research can improve healthcare design!

We’ll soon be recruiting a data analyst to join projects like this—stay tuned for updates!

#Healthcare #Research #PatientCentred @uniofaberdeen.bsky.social

Patient preferences for models of care for fibromyalgia: A discrete choice experiment Background Fibromyalgia is a common reason for referral to a rheumatologist and is a centralised pain state with symptoms beginning in adolescence/early adulthood and manifests as pain throughout the ...

📢 New insights from the #PACFiND study!

Our latest research highlights patient preferences in #fibromyalgia care:

✔️ Rheumatologist-led care preferred, but shorter waits matter
✔️ Quick access & personalised treatment are key

Read more: journals.plos.org/plosone/arti...