And with that, #PARE2024 is over! Thank you to everyone who was involved, including delegates. We have had some fantastic discussions on patient involvement in research. Time to digest, reflect, and begin implementing new ideas!
Our three #PARE2024 best practice fair award recipients - including 2 Young PARE and 1 International PARE delegate! ✨
Very proud to have delivered this workshop on co-authoring research publications, moderated alongside Paul, Alison, and Ofra. The key messages included early involvement of patient partners, recognition of their full experience/expertise, and better communication #PARE2024
So many people described #PARE2024 as the most enjoyable and fun conference they’ve been to… and it’s easy to see why! Blend kindness, good humour, empathy, and a shared vision for improved RMD care and you have the perfect environment! Very proud of our community. 💙
We clearly weren’t competitive at all… but it paid off, we won the #PARE2024 quiz! Credit to GPT-4o for the team name and logo! 😍
It wouldn’t be a musculoskeletal-friendly conference without some stretching with PARE legend, Dieter! #PARE2024
Some really interesting discussions on patient involvement in consortia - particularly challenges remain with meaningful involvement in basic and translational research given the added complexity of topics #PARE2024
Time for a ‘meet the EULAR experts’ session - we’re so lucky to have such an informed and dedicated group of patient research partners and researchers! #PARE2024
The different research perspectives on involving patient research partners in research - perfectly summarised! #PARE2024
🌍 #PARE2024 continued with #WorldCafe on #PatientResearchPartners in research
🏃🏻♀️➡️ We’ve come a long way but still have a far to go
💡 We identified many challenges but also solutions- hopefully through continued discussion, we can make PRP involvement the norm
#EULAR
#EMEUNET
#EULARPARE
William Tillett from @uniofbath.bsky.social highlights the particularly important role of a designated co-ordinator to support and facilitate meaningful involvement of PRPs in rheumatology research #PARE2024
Martin Stevens from @uniofaberdeen.bsky.social (soon to be @universityofleeds.bsky.social) highlights challenges of patient research partner involvement in RMD research based on iPRePaRe www.abdn.ac.uk/iahs/researc... #PARE2024
😃En AMELyA Lupus Madrid estamos orgullosos d contar con 2 Patient Research Partners!
🔬La participación d pacientes en investigación es clave para avanzar en investigación y mejorar calidad d vida d pacientes. Por eso es una de nuestras principales prioridades 💪.
#PARE2024
Laure Gossec, EULAR Treasurer, highlights rheumatology patient involvement achievements, and areas for improvement - including better involvement in industry R&D and #medaffairs, basic/translational research, EDI, and financial compensation #PARE2024
Patients are currently involved in 3 research consortia where EULAR is a consortia partner #PARE2024
Welcome! Hope you are enjoying so far! 👏 #PARE2024
Involvement of patients research partners in EULAR activities is widespread - nothing about us without us! #PARE2024
Here we are! 🙌
#PARE2024
#PARE2024 officially kicks off with a welcome from #EULAR #PARE Chair Peter Boyd and EULAR President Daniel Aletaha.
Keynote from EULAR Treasurer Laure Gossec on collaborative research through the lens of the past, present and future.
Segundo día y comienzo oficial de la Conferencia EULAR PARE en Bruselas!
3 días para establecer nuevas conexiones y trabajar en nuevos proyectos que traigan beneficios a la comunidad de pacientes con enfermedades reumáticas y musculoesqueléticas.
#PARE2024
It may be empty now, but by the end of tomorrow, we want our ‘wall of engagement’ to be full - share your ideas, best practices, and feedback! #PARE2024
We started off #PARE2024 listening to 34 ‘elevator’ presentations from national patient organisations across Europe and beyond as part of the Best Practice Fair. The breadth of activities was astounding! Such a great opportunity to learn from others. This is what it is all about! 👏
Ready for the EULAR Annual European Conference of PARE 2024 - 100+ people with lived and professional experience of rheumatic and musculoskeletal diseases (RMDs) coming together to shape the future of patient involvement in rheumatology research.
#PatientEngagement #PatientInvolvement #PARE2024
I never seem to be away from @manchesterairport.bsky.social! Excited to be heading to Brussels for the EULAR PARE Conference 2024! #PARE2024 #PatientEngagement #PatientInvolvement
