Yesterday was #WAD2025, celebrating the power of dreams!
For people living with RMDs, dreams bring strength and motivation. We are proud to partner with @eular.org and share the dreams of our #PatientResearchPartners in HIPPOCRATES with you.
💭 What are your #RMDreams?
At @inmusc.bsky.social , we believe progress happens when we listen. That’s why we’re committed to working with patients, because real innovation comes from collaboration.
#PatientResearchPartners #HealthcareEvolution #PersonCenteredCare
A little bit of Friday fun with PRPNEtTT - pop over to substack and join the convo 👍
open.substack.com/pub/prpnettt...
#patientresearchpartners #PPIE
▶️PRPNetTT is a new, peer-led UK network & think tank for people involved in patient partnership across rheumatology research & service improvement.
▶️It's a space for collaborative peer support & open discussion between #PatientResearchPartners, #PRPs
▶️ prpnettt.substack.com
@psahq.bsky.social
🎉 Something exciting is on the horizon for Patient Research Partners in rheumatology! A new national, peer-led initiative.
This isn’t another top-down group. We’re experienced. We’re collaborative.
Stay tuned – expressions of interest open soon🖐🏻
#PRPNetTT #rheumatology #patientresearchpartners
The answer to yesterday’s quiz was ‘A’ (there were more women than men responders to the Patient Research Partner survey!) I have popped some ponderings on this imbalance on a new blog page over on the PsA HQ website. The link in bio- please check it out🖐🏻 #patientresearchpartners
#gendergap
Some mid-week fun and a peek into the early UK PRP survey results. Can you guess the answer? Comment below ….. (the actual answer will be added later) 👇🏻
#patientresearchpartners #researchresults #rheumatology #patientexperience #patientinvolvement #ppie #arthritisawareness #patientvoice
A quick post to say thanks to everyone who’s been listening in to my #podcasts on PsA HQ channel, it really helps to inspire me & makes it worthwhile. 🎤More planned so please stay tuned and follow 🖐🏻🎧All links in my bio #rheumatology #patientperspective #patientresearchpartners
I will be analysing my Patient Research Partner survey data over the next few weeks (not counting Christmas... I need the break!) Does anyone want to have a quick guess at the 👫 survey response %s? 🤔🖐️ #patientresearchpartners #PPIE
🌍 #PARE2024 continued with #WorldCafe on #PatientResearchPartners in research
🏃🏻♀️➡️ We’ve come a long way but still have a far to go
💡 We identified many challenges but also solutions- hopefully through continued discussion, we can make PRP involvement the norm
#EULAR
#EMEUNET
#EULARPARE
