FREE Public Collaborator Training: Reviewing Plain English Summaries (or Lay Summaries) Thursday, 21 May 2026, 1pm to 2.30pm Aimed at members of the public who would like to contribute to the research process: bit.ly/4bTVYEq #PPIE #PPI #Training #PrimaryCare #Research @oxprimarycare.bsky.social

FREE Public Collaborator Training: Reviewing Plain English Summaries (or Lay Summaries) Thursday, 21 May 2026, 1pm to 2.30pm

Aimed at members of the public who would like to contribute to the research process: bit.ly/4bTVYEq

#PPIE #PPI #Training #PrimaryCare #Research
@oxprimarycare.bsky.social

Curious about how research actually works? 🔍 The SPCR recently helped facilitate a Public Collaborator Training webinar: “What is the research process?” You can now explore the slides, watch the recording, and access the SPCR Public Collaborator Training Booklet here 👇 https://bit.ly/4c0pLdH #PPIE

Curious about how research actually works? 🔍

The SPCR recently helped facilitate a Public Collaborator Training webinar: “What is the research process?”

You can now explore the slides, watch the recording, and access the SPCR Public Collaborator Training Booklet here 👇

bit.ly/4c0pLdH

#PPIE

📖 NEW RESOURCE: A new Public Collaborator Training and Development Booklet has been soft launched to strengthen the skills, confidence, and knowledge of people involved in patient and public involvement (PPI) in research: bit.ly/4uGy1bc #SPCR #PrimaryCare #PPI #PPIE #Research @halle-j.bsky.social

📖 NEW RESOURCE: A new Public Collaborator Training and Development Booklet has been soft launched to strengthen the skills, confidence, and knowledge of people involved in patient and public involvement (PPI) in research: bit.ly/4uGy1bc

#SPCR #PrimaryCare #PPI #PPIE #Research
@halle-j.bsky.social

Patient organizations involvement in healthcare: a rapid review and conceptual framework - Globalization and Health Background Patient organizations have become increasingly influential in the healthcare sector, offering unique insights into unmet health needs, disease impact, and patients’ quality of life. These g...

Patient organizations involvement in healthcare: a rapid review and conceptual framework

Arianna Gentilini, Iva Parvanova, Samra Ghazi, Kristy M. Scarfone & Jillian Kohler

link.springer.com/article/10.1...

#COI #CDoH #Pharma #PPI #PPIE #PatientAdvocacy #Healthcare

FREE Public Collaborator Training: Reviewing Plain English Summaries (or Lay Summaries) Thursday, 21 May 2026, 1pm to 2.30pm Aimed at members of the public who would like to contribute to the research process: bit.ly/4bTVYEq #PPIE #PPI #Training #PrimaryCare #Research @oxprimarycare.bsky.social

FREE Public Collaborator Training: Reviewing Plain English Summaries (or Lay Summaries) Thursday, 21 May 2026, 1pm to 2.30pm

Aimed at members of the public who would like to contribute to the research process: bit.ly/4bTVYEq

#PPIE #PPI #Training #PrimaryCare #Research
@oxprimarycare.bsky.social

Celebrating Five Years of PPIE – and Looking Ahead - PenARC On Friday 27th February 2026, colleagues, public contributors and partners gathered at the Exeter Mercure Southgate Hotel to celebrate five years of PenARC Patient and Public Involvement and Engagemen...

We recently celebrated 5 years of PPIE at PenARC – and looked ahead to what’s next for ARC South West.
Lots of thoughtful conversations about inclusion, impact, & how we make sure research reflects what matters most to people.
Read more here 👇
bit.ly/4dgyxGN

#PPIE #CoProduction #HealthResearch

The SPCR recently hosted a masterclass titled “Engaging people experiencing socioeconomic deprivation in research.” Webinar slides and link to the recording is now available for viewing: https://www.spcr.nihr.ac.uk/news/spcr-masterclass-recording-engaging-people-experiencing-socioeconomic-deprivation #SPCR #PPIE #PrimaryCare #Research

The SPCR recently hosted a masterclass titled “Engaging people experiencing socioeconomic deprivation in research.” Webinar slides and link to the recording are now available for viewing: www.spcr.nihr.ac.uk/news/spcr-ma...

#SPCR #PPIE #PrimaryCare #Research

No Ethics Needed? Towards an Ethics of Care for Public and Patient Involvement and Engagement Introduction Public and Patient Involvement and Engagement (PPIE) enhances the inclusivity, relevance and responsiveness of health research for communities. Although public and patient involvement i...

No Ethics Needed? Towards an Ethics of Care for Public and Patient Involvement and Engagement

Kanwal Mand, Anna Lavis, Melissa Stepney, Roisin Mooney, Kam Bhui

onlinelibrary.wiley.com/doi/full/10....

#Ethics #PPI #PPIE

📖 NEW RESOURCE: A new Public Collaborator Training and Development Booklet has been soft launched to strengthen the skills, confidence, and knowledge of people involved in patient and public involvement (PPI) in research: https://bit.ly/4uGy1bc #SPCR #PrimaryCare #PPI #PPIE #Research

📖 NEW RESOURCE: A new Public Collaborator Training and Development Booklet has been soft launched to strengthen the skills, confidence, and knowledge of people involved in patient and public involvement (PPI) in research: bit.ly/4uGy1bc

#SPCR #PrimaryCare #PPI #PPIE #Research

FREE Public Collaborator Training: Reviewing Plain English Summaries (or Lay Summaries) Thursday, 21 May 2026, 1pm to 2.30pm Aimed at members of the public who would like to contribute to the research process: https://bit.ly/4bTVYEq #PPIE #PPI #Training #PrimaryCare #Research @oxprimarycare.bsky.social

FREE Public Collaborator Training: Reviewing Plain English Summaries (or Lay Summaries) Thursday, 21 May 2026, 1pm to 2.30pm

Aimed at members of the public who would like to contribute to the research process: bit.ly/4bTVYEq

#PPIE #PPI #Training #PrimaryCare #Research
@oxprimarycare.bsky.social

FREE Public Collaborator Training: What is the research process? Tuesday, 24 March 2026, 1pm to 2.30pm Join us for an introduction to the research process & discuss practical examples of involvement that can happen along the way: https://bit.ly/4dxEZcm #PPIE #PPI #Training #PrimaryCare #Research

FREE Public Collaborator Training: What is the research process? Tuesday, 24 March 2026, 1pm to 2.30pm

Join us for an introduction to the research process & discuss practical examples of involvement that can happen along the way: bit.ly/4dxEZcm

#PPIE #PPI #Training #PrimaryCare #Research

Nominations 2026 | Students | The University of Aberdeen

🎉 Delighted to announce our PPIE team has been shortlisted for a UoA Principal’s Prize for Research Excellence!

A wonderful reminder of what's possible when we work together as true partners! 🙏

www.abdn.ac.uk/students/eve...

#PPIE #PatientAndPublicInvolvement #UniversityOfAberdeen

🥳 Speaking to MedTech about #epilepsy, #depression, #Parkinsons & #Alzheimers and our #PPIE work at the international Advanced Research & Invention Agency (ARIA) neurotech summit with tremendous colleagues Jon Nelson, Kuhan Pushparatnam, and Trevor Salomon 🤩🤩🤩!

At the National Space Centre! 🚀

Richard’s stroke happened four and a half years ago and abruptly changed an active life. To watch the full story, follow the link in our bio.

#StrokeRecovery #NeuroRehabilitation #XRRehabilitation #DigitalHealth #PatientStories #CoDesign #PPIE #MedTech #TeleHealth #TeleHealth #XR #XRneurorehab

Celebrating Four Years of the Shared Commitment to Public Involvement On the fourth anniversary of the Shared Commitment to Public Involvement, SPCR reflects on its contribution to strengthening public involvement in health and care research.

Today we're celebrating the 4th anniversary of the Shared Commitment to Public Involvement 🎉

We are grateful to be part of a community working together to make public involvement stronger & more meaningful. More here: bit.ly/4liVZoN

#PPIE #SharedCommitment @nihr.bsky.social @hralatest.bsky.social

Last week we hosted the @kingshealth.bsky.social Rare Disease Network PPIE event at @kingscollegelondon.bsky.social.

Patients, researchers, clinicians, charities and industry came together to discuss one key question:

How do we make rare disease research truly inclusive?

#RareDisease #PPIE

🔗To see the full poster visit: www.iamcharlene.com

🧡

#PatientLedResearch #RareDisease #RareDiseaseResearch #PosterPresentation #ResearchCommunity #RareCancer #IAmCharlene #RareGems #BionicWarrior #PPI #PPIE #PatientInvolvement

An great opportunity to explore #PPIE in #healthresearch with the excellent @penarc.bsky.social team.

Registration is now open for the PPIE Summer School!

Exeter | 1–3 July 2026

A 3-day, in-person event bringing together researchers & public contributors to explore meaningful involvement in health & care research.

Find out more: tinyurl.com/37x32cy4

#PPIE #HealthResearch

Over the coming days and weeks, we'll be sharing some more opportunities to get involved in research through our #JIA VIP Research panel.

So if you haven't already signed up, you can join the 280 families who are already part of the panel at www.jarproject.org/vip/families
#PPIE

A graphic featuring an image of people meeting up and having a cup of tea, sitting outdoors in a circle. Text reads: Public voices are embedded at the heart of decisions about how NHS data is accessed and used. NHS South West Secure Data Environment, part of the NHS Research Secure Data Environment Network.

📣 The South West SDE is putting public voices at the heart of NHS data decisions. Our new #PPIE strategy, co‑produced with our #DigitalCriticalFriends, sets out how we embed transparency and ethics in decision‑making.

www.southwestsde.nhs.uk/public-invol...

#DataSavesLives #PoweredByNHSData

KHP Rare Disease Network PPIE Event :: King's Health Partners

Friday March 6th the @kingshealth.bsky.social Rare Disease Network will be hositing a #PPIE Event focused on demystifying the connection between patients, researchers and industry, strengthening the partnerships that drive inclusive and impactful rare disease research.
tinyurl.com/khprdnppie

We spent the morning at PenARC’s PPIE Celebration event. From highlights & shared successes to interactive sessions, there’s huge pride in what’s been achieved & real ambition for the future. Five years of impact, collaboration and learning to build on💬✨

Stay tuned for more reflections!

#PPIE

How can we better support people with dementia as active partners in research? 🧠 Our latest SPCR masterclass, “Let’s Talk Dementia,” explored inclusive communication strategies to strengthen research partnerships: https://bit.ly/4aQmnl0 #DementiaResearch #InclusiveResearch #PPIE #PrimaryCare #Research

How can we better support people with dementia as active partners in research? 🧠 Our latest SPCR masterclass, “Let’s Talk Dementia,” explored inclusive communication strategies to strengthen research partnerships: bit.ly/4aQmnl0

#DementiaResearch #InclusiveResearch #PPIE #PrimaryCare #Research

LinkedIn This link will take you to a page that’s not on LinkedIn

Increasing diversity in research participation: A good practice guide for engaging with underrepresented groups.

www.england.nhs.uk/aac/wp-conte...

#researchparticipation #PPIE #diversity

Clear and consistent reporting of the involvement of patients and the public is essential for building trust and improving research quality. Our work highlights the need for universities and research institutes to reflect on the practice and provide better support for #PPIE

We worked alongside a group of patient co-authors to better understand our findings and together we developed 7 recommendations to help improve future reporting of #PPIE in research and inclusion of #PPIE in publishing. We created a flow diagram to show them visually

Our study looked at over 500 research papers published by authors from @qmul-wiph.bsky.social at @qmul.bsky.social to see how well #PPIE was reported.
1 in 5 papers mentioned how PPIE were involved within the main text of the paper, 10% included a plain English summary & nearly all were open access

A rapid evaluation of the reporting and publishing practices of patient and public involvement and engagement in health research within a UK university institute

I’m really excited to be able to share the early access version of our new review: A rapid evaluation of the reporting and publishing practices of #PPIE in health research within a UK university institute. Published #OpenAccess in Research Involvement and Engagement rdcu.be/e4VAX

Importance of Public Involvement Research The Inclusive Involvement in Research theme are supporting a series of national events highlighting the important role of public involvement in research. The sessions will discuss findings from the va...

The webinar-hosted by @skourkos.bsky.social & @elspethma.bsky.social was part of an 'Importance of #PPIE in Research' series organised by @arceastofengland.bsky.social @arc-southlondon.bsky.social & @penarc.bsky.social.
Recording & notes will be posted here: arc-eoe.nihr.ac.uk/importance-p.... 2/2