Without FDA flexibility for rare diseases our daughter’s future is at risk Explore FDA flexibility in medical care as a mother shares her daughter's inspiring journey through health challenges.

For instance:
#Galactosemia and #Govorestat. We are desperate!

Or #PDCD. The kid in this article should have been dead by the age of four, got a promising new medication, is now six, and will now be denied the medication? I am furious on behalf of them. 😡
rarerevolutionmagazine.com/without-fda-...

Saol Therapeutics Secures FDA Type A Meeting for SL1009's Future in Treating PDCD Saol Therapeutics has been granted a pivotal Type A meeting by the FDA to discuss the future of SL1009 for treating Pyruvate Dehydrogenase Complex Deficiency, advancing towards potential approval.

Saol Therapeutics Secures FDA Type A Meeting for SL1009's Future in Treating PDCD #United_States #Saol_Therapeutics #SL1009 #Roswell #PDCD

Saol Therapeutics Pursues FDA Approval for SL1009 in Treating Rare Genetic Disorder Saol Therapeutics faces challenges with FDA's Complete Response Letter for SL1009, a potential treatment for Pyruvate Dehydrogenase Complex Deficiency, a rare pediatric disease.

Saol Therapeutics Pursues FDA Approval for SL1009 in Treating Rare Genetic Disorder #United_States #Saol_Therapeutics #SL1009 #Roswell,_GA #PDCD

A sunset over silhouetted mountains

Selfie with my husband

A cluster of white blossoms on a tree branch

The Love for Lily: Hope for #PDCD fundraiser market was a cold one! 🥶 Here are two images that found new homes today + a selfie with the husbabe. 💜

#michiganoutdoors
#michiganphotography
#michiganfemaleartist
#michigannature
#grandrapidsmi

Graphic with two floral images and text about Love For Lily: Hope for PDCD

👉🏻 THIS Sunday, Pábitel Photography will be a vendor at the 2nd Annual Love for Lily: Hope for #PDCD fundraiser event! Event hours are from 11:00 a.m. to 4:00 p.m. at the Fulton Street Market in #GrandRapidsMichigan. Come out and support a great cause tomorrow!
🧵6/7

Collage of five floral, landscape, and wildlife images with overlaying text reading "Matted 8x12 Prints."

Collage of two floral and landscape images with overlaying text reading "Canvases."

Come stop by from 11:00 a.m. to 4:00 p.m. and support an amazing cause with us!

➡️Love for Lily: Hope for #PDCD Market
➡️ Fulton St. Market in #GrandRapidsMichigan
➡️ Sunday, May 4, 2025
➡️ 11:00 a.m. to 4:00 p.m.

#michiganart
#michiganexplored
#grandrapidsmi
#michiganwildlife
#michiganbeaches

Collage of nine floral, landscape, and wildlife images with overlaying text reading "Blank Notecards."

Collage of 14 floral, landscape, and wildlife images with overlaying text reading "5x7 Prints, Matted 5x7 Prints."

Collage of 13 floral, landscape, and wildlife images with overlaying text reading "8x10 Prints, Matted 8x10 Prints."

A peek at what images you'll find when you stop by my booth at the Love for Lily: Hope for #PDCD Fundraiser Market THIS Sunday! 💌

From notecards and 5x7 prints to 12x18 canvases, Pábitel Photography will have allll the #nature + #landscape photos to welcome Spring and Summer into your home. 🤍

On May 4th, Pábitel Photography will be a vendor at the 2nd Annual Love for Lily: Hope for PDCD Fundraiser in Grand Rapids, Michigan. Mark your calendars to join in on supporting a great cause!

Learn more: www.facebook.com/share/1YBeo4...

#PDCD #GrandRapidsMichigan #Michigan #WestMichigan