Our new multinational survey in @HepatologyComm highlights the severe impact of PSC itch (pruritus) ๐ซ
Key findings:
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Itch significantly reduces quality of life & sleep.
โ ๏ธ 75% of those on multiple meds get little or no relief.
We NEED better treatments NOW. buff.ly/XQ1FlTA #LetsBeatPSC #PSCItch
UPDATE ๐ข Following our previous post about the national shortage of Rifampicin in the UK, PSC Support and @PBCFoundation have released a joint statement.
Also available to read on our website.
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#LetsBeatPSC #PBC #PrimaryBiliaryCholangitis #Liver #PSCItch #PBCItch
We've become aware that of a national shortage of #Rifampicin. If you take Rifampicin for #PSCitch, contact your liver specialist to discuss options.
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#PSCSupport #MedicationUpdate #LetsBeatPSC
Less than a week to go! Our next Ask the Expert session covers cholangitis attacks & pruritus (the itch)โtwo PSC symptoms we know cause concern. Drs. Thorburn & Hussain will present & answer your questions.
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Register here: buff.ly/YS804jS
#PSC #AskTheExpert #PSCItch
If you have itch, you might be interested in the VISTAS trial testing a new drug to combat itch in PSC. Find out more and see if you could take part.
โก๏ธ buff.ly/3Xex2jy #LetsBeatPSC #PSCItch #PSCResearch #PSC