Same, same, but (quite) different.
1st comparison of #PubMed vs #EuropePMC for #PatientAuthor pubs.
Same = can search both
Same = rapid increase clear
Different = 2x difference in output
We need research on research methods to advance patient authorship!
@ismpp.bsky.social @bmj.com @jama.com

Well done PxP for such a practical tool to help #patients read peer-reviewed scientific #publications. | Karen Woolley Well done PxP for such a practical tool to help #patients read peer-reviewed scientific #publications. The guidance on the #PatientAuthor affiliation should make it easier for (more) patient-authored ...

Awareness of the importance of using #PatientAuthor as one affiliation is increasing. Best way to find patient-authored publications...with patient authors' permission. Transparency helps! www.linkedin.com/feed/update/...

What if the flip happens? A patriarchal dismissal of #Patient involvement in #publications might be dismissed sooner than (some) people think. Ready to adapt processes, practices & attitudes? #PatientAuthor #PlainLanguageSummary
@ismpp.bsky.social

Author fees and waivers How to disclose, apply, and administer author fees and waivers, discounts, or incentives. And how to maintain the independence of editorial decision making.

NEW! How do journals' fee waivers affect #PatientAuthor publications?
"Waivers to those in financial need should be considered regardless of geography (country),discipline, or affiliation of the author." @ismpp.bsky.social
publicationethics.org/guidance/gui...

A patient-authored publication a day keeps tokenism (& paternalism) away.
It's so hard to change medical #publications - until we do. Kudos #PatientAuthor pioneers & allies! #PPI @ismpp.bsky.social @envisionpharma.bsky.social
@amicascientific.com @bmj.com @amyprice.bsky.social