LETTER: Science borrows a page from art: farewell message from the Atlantic Cancer Consortium Patient Advisory Committee Farewell message from the Atlantic Cancer Consortium Patient Advisory Committee

Take a moment and read our report back to community as the Atlantic Cancer Consortium Patient Advisory Committee 💓

It has been an honour to represent and work for the benefit of Atlantic Canadians, particularly those who were affected by cancer

www.saltwire.com/newfoundland...

#PatientPartners

fatigue, weakness, swallowing difficulties, and the invisible labour of navigating complex care pathways.

🎙️ Link: youtu.be/bkk_okQ3mtk

#AutoimmuneDisease #RareDiseaseResearch #PatientPartners #TranslationalScience

🧵 End

New post just dropped reflecting on why pre-award PPI is expected everywhere yet still so hard to do meaningfully!
#PPI #LivedExperience #ResearchInvolvement #PatientPartners #PreAwardPPI #CoProduction #HealthResearch #PRPNetTT

The 3 R’s: Recognition, remuneration and reimbursement of #PatientPartners in research.

Join Dr. Stuart Nicholas of the Ottawa Hospital Research Institute for an insightful webinar on how to include people with lived experience in research. 
📆 Nov 26
🕞 9am PST
Register: https://bit.ly/4r25UBz

Spotify – Web Player

and you can listen to our podcast episodes (all 28 of them) here:

SPOTIFY: open.spotify.com/show/0dty5nE...

14/ #NewfoundlandAndLabrador #Advocacy #PatientPartners #PublicEngagement #Cancer

Public Interest Group on Cancer Research We formed this group in 2021. We gratefully acknowledge funding by The Office of Public Engagement – Quick Start Fund that made this partnership possible! We also thank NLSUPPORT for supporti…

You can read the guest blogs on our website: please check here:

strength-in-community.ca/public-inter...

13/ #NewfoundlandAndLabrador #Advocacy #PatientPartners #PublicEngagement #Cancer

Please join us by reading the blogs, listening to our podcast episodes, and advocating for a better future in NL and beyond

You can read our publication about the podcast and blog series on cancer here: www.mdpi.com/1718-7729/32...

12/ #NewfoundlandAndLabrador #Advocacy #PatientPartners

- While I thought (and still think) that it is the obligation of the Government of of Newfoundland and Labrador and the NL Health Services to inform and empower our population, we wanted to do our part as dedicated advocates

11/ #NewfoundlandAndLabrador #Advocacy #PatientPartners

- This project has been fueled by care and compassion that we feel towards the people affected by cancer ❤️

- Cancer affects 2 in 5 people in our province. Its effects extend to family, friends, workplaces, and communities

10/ #NewfoundlandAndLabrador #Advocacy #PatientPartners

- We are incredibly honored to have published our experience, perspectives, and lessons learnt in this publication

It also gave us a unique opportunity to advocate for better public and patient contributor compensations globally

9/ #NewfoundlandAndLabrador #Advocate #PatientPartners

Looking forward to the 10th Brit-PACT annual hybrid conference on Friday! Interested researchers, HCPS and patients can register via the email at info@britpact.org 🖐️
#psoriaticdisease #rheumatology #patientpartners

That sounds familiar! #PatientPartners

🌟 Our Epidemiology group held a session on getting effective feedback in #PPIE. We explored embedding patient & public voices from the start, shared experiences across projects, and reflected on how to strengthen PPIE so research is relevant & impactful. 🙌 #Research #PatientPartners

Event - PxP Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).

For Patients, By Patients

Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session!

If you want to join, it's free!

Sign-up here ➡️ pxphub.org/event/

And if you missed day 1, head to the #Rewatch parties 🥳

a person is holding a wallet with a picture of a man inside of it . ALT: a person is holding a wallet with a picture of a man inside of it .

My next manuscript is about how university, funder or federal government policies or practices prevent (or make it harder) to compensate public partners

Stay tuned 😠

#PublicEngagement #Compensation #PatientPartners #Advocacy #Inequity #WhatIsWrongWithUs

The Australian Consumer Partnerships in Research Aug 12, 2025 finalists showcase-Register to tune in wherever you are in the medical world.
ccrew.accesscr.com.au/cpir-2025/li...

#CPIR2025Awards #patientengagement #patientpartners #consumerpartnership #clinicalresearch

If we can get together, there is nothing we cannot achieve.

One day, we will eradicate this disease called cancer

#PublicEngagement #Cancer #Advocacy #Immigration #Immigrants #Science #InternationalScientists #Hope #Dreams #PatientPartners #NewfoundlandAndLabrador

How to Read a Scientific Paper - PxP Co-Created by Dawn Richards and Jim Kempster with input from CIHR-IMHA PERA members Graphics created by Tianna Magel   Scientific […]

Interested in reading scientific papers but not sure where to start or what the parts of a paper are? We've co-created a resource with #PatientPartners for you! See our blog pxphub.org/how-to-read-... and the resource laid out like a scientific paper pxphub.org/wp-content/u... /1 #PatientEngagement

Canada leads the future of diabetes care by listening to those with lived experience The conversation about diabetes must extend beyond pharmaceutical breakthroughs and into questions of affordability, access, and social support.

The conversation about diabetes must extend beyond pharmaceutical breakthroughs and into questions of affordability, access, and social support, says Dr. Rachel Reeve:
www.hilltimes.com/story/2025/0...

@diabetescanada.bsky.social

#cdnpoli #diabetes #patientpartners #patientvoices #patientadvisors

Show, don't tell Some call it ‘copying’. I call it ‘sharing best practice’

Too often, patients are brought in after the fact. My latest explores what authentic engagement really looks like. #PatientPartners

Episode 24 – Patient influencers of research by Public Interest Group on Cancer Research Welcome to our new podcast episode! Our guest today is Dr. Holly Etchegary!Holly is one of the founders of the Public Interest Group on Cancer Research, an Associate Professor at Memorial University, ...

My colleague Dr. Holly Etchegary talks to Jason Wiseman and Janine-Taylor Cutting about how patients and family members influence the health-related research

take a look ❤️

#NewfoundlandAndLabrador #PatientOrientedResearch #Podcasting #Advocacy #PatientPartners

creators.spotify.com/pod/show/sev...

🎤 Take a look at the exciting keynote panel opening #eHealth2025! Pleased that the patient perspective is included with the participation of PAN member, @amaybee.bsky.social
📍June 1–3 | Toronto
💻 Canada’s leading digital health event
🔗 e-healthconference.com/e-health-2025
#patientpartners

Write this down — AI scribes essential for overall success of AI in health care: Can... The use of AI scribes in health care is foundational for the successful implementation of other AI technologies to facilitate disease detection and diagnosis and optimize treatment. That was one ke…

Canada’s Drug Agency made AI the focus of its 2025 Watch List 🤖
PAN members @sandrashares.bsky.social @ctzenimprover.bsky.social @donnapp.bsky.social helped shape it—alongside other patient/caregiver partners.
📖 More via Pat Rich: bit.ly/3YxG1N7
#AI #PatientPartners #PatientsUseAI

I had the pleasure of speaking with Roche employees about patient engagement today.

I was thrilled at their inquisitive questions that told me they were truly interested in the role of #patientpartners.

#engageateverystage because we truly are #bettertogether.

👋 Welcome to PAN on BlueSky!
We’re the Patient Advisors Network — a community of patient and caregiver partners across Canada working to make healthcare more inclusive, equitable, and people-centered.
Follow us for info on #PatientPartners #healthcare #PatientExperience

This is a must read for #patientpartners #researchers
“Compensation policies must be transparent and consistently applied across all research programmes, eliminating the burden on patient partners to negotiate their worth”

#PatientPartners involved with Health Services Research Apply Today @academyhealth.bsky.social lth #ARM25 academyhealth.org/page/2025-ar...

#TakeSteps for #CrohnsAndColitis with @childrensnational.bsky.social Team on 5/17/25 in #WashingtonDC‼️

Join Our Team Here:
takesteps.crohnscolitisfoundation.org/index.cfm?fu...

#IBD #CrohnsDisease #UlcerativeColitis #Crohns #Colitis #Advocacy #Research #GrowthStudy #PatientPartners #Kids
👟👟🐾🐾

#PatientPartners are a vital part of the MUHC community. We’re always looking for more volunteers to join our team. The #PatientEngagement Office has launched a new web page explaining what patient partners do and added an online form to simplify the application process!

muhc.ca/patient-part...

📢 Weekend reading on power dynamics in #PatientEngagement in #Research. Preprint (that means not peer reviewed yet) from our team that includes #PatientPartners and research allies and is about 4 themes concerning power on #PPI teams - osf.io/preprints/os... A bit of a 🧵 for you .../1