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Is it right to restrict access to one’s health records? Author: Prof. Edward S. Dove, School of Law and Criminology & ALL Institute member, Maynooth University In nearly every interaction we have with a health practitioner – be it a GP, nurse, denti…

Did you know you don’t always have the right to see your own medical records, even under GDPR?

In our latest blog, we explore the issue, & why it may be time for a wider debate.

#PatientRights #GDPR #HealthLaw #IrishHealthcare #PatientAutonomy #HealthcareEthics
www.ideasinall.com/is-it-right-...

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Panel approves 'right to try' style bill allowing investigational treatments for some patients, 4-1 The committee approved Senate Bill 933 to let terminally ill or those with life‑altering conditions try investigational treatments not yet FDA-approved, requiring informed consent and that patients bear treatment costs; members asked about eligibility rules and provider participation.

Oklahoma's House Public Health Committee just approved a groundbreaking bill that allows terminally ill patients to access experimental treatments not yet approved by the FDA!

Click to read more!

#OK #CitizenPortal #LegislativeProcess #PatientRights #InvestigationalTreatments

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How The Mental Health Act 2025 Changes Your Rights (And What You Must Know)
How The Mental Health Act 2025 Changes Your Rights (And What You Must Know) YouTube video by My Notebook Overview

Learn
𝗛𝗼𝘄 𝗧𝗵𝗲 𝗠𝗲𝗻𝘁𝗮𝗹 𝗛𝗲𝗮𝗹𝘁𝗵 𝗔𝗰𝘁 𝟮𝟬𝟮𝟱 𝗖𝗵𝗮𝗻𝗴𝗲𝘀 𝗬𝗼𝘂𝗿 𝗥𝗶𝗴𝗵𝘁𝘀 (𝗔𝗻𝗱 𝗪𝗵𝗮𝘁 𝗬𝗼𝘂 𝗠𝘂𝘀𝘁 𝗞𝗻𝗼𝘄)
in just 7 minutes

youtu.be/R11pZmGfFm4

#MentalHealthAct2025 #MentalHealthLaw #PatientRights #UKLaw #AutismAdvocacy #HumanRightsAct #HealthcareLaw #MentalHealthUK #NominatedPerson #LegalMasterclass

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Rare Disease Group Urges FDA Clarity Advocacy group urged FDA clarity on Apr 1, 2026; ~7,000 rare diseases affect 25–30M Americans, raising concerns about development timelines and investment risk.

Rare Disease Group Urges FDA Clarity: Advocacy group urged FDA clarity on Apr 1, 2026; ~7,000 rare diseases affect 25–30M Americans, raising concerns about development timelines and investment risk. 👈 Read full analysis #RareDiseases #FDA #HealthAdvocacy #MedicalResearch #PatientRights

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RobinReach

RobinReach

WARNING: The $11 Billion Patient Lie
Think your bill tells the whole story, think again. Trace the money, spotlight the fine print, and push back. 🔎💸🏥

https://youtu.be/sLVTxKePa-4?si=07a_Rol9do16qB3y
#HealthcareTruth #PatientRights #FollowTheMoney #WatchNow

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Mission Hospital to Evaluate Leaders After Patient-Care Violations | WNC Times Mission Hospital faces scrutiny after patient-care violations. Leadership to be evaluated following 'Immediate Jeopardy' sanction. Read more here.

Mission Hospital to Evaluate Leaders After Patient-Care Violations wnctimes.com/article/miss... #MissionHospital #Asheville #WNC #HealthcareNews #PatientSafety #CMS #MedicalEthics #PublicHealth #EmergencyMedicine #HealthCareReform #WNCNews #WNCnews #CommunityHealth #MedicalCompliance #PatientRights

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JFC. Steve Jobs refused cancer treatment. #PatientRights

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RobinReach

RobinReach

STOP: The $50,000 "Observation" Billing Trap
Hospitals can mark you as observation not admitted. That small label can lead to huge out of pocket bills.⚠️🏥💸
🎥 https://youtu.be/qpruUwMm5To?si=CaWXjnYsDW4NPgSl
#HealthcareCosts #MedicalBills #PatientRights #InsuranceTips

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Major Decision! Assisted Dying Bill Rejected in Scotland Vote The proposed law would have allowed people in Scotland with a terminal illness and a life expectancy of six months or less to seek help to end their life, if it had been approved by parliament and the...

Assisted dying bill defeated in Scottish parliament vote

#Scotland #AssistedDying #UKNews #Parliament #MedicalEthics #BreakingNews #PatientRights #HealthPolicy

www.easterneye.biz/assisted-dyi...

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Join us for "Whose Death Is It Anyway? Medical Aid in Dying in NYS"
📅 March 31, 2026
🕑 2 PM ET
🎟️ Register: us06web.zoom.us/meeting/regi...

#TransformationTuesday #MedicalAidInDying #AgingJustice #PatientRights #AdvanceCarePlanning #IntergenerationalJustice #GrayPanthersNYC

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Leaked federal report calls for recognition of covid vaccine injuries — The Nordic Times A leaked ACIP report acknowledges that thousands of Americans suffering from post-vaccination syndrome have been ignored for five years.

PACVS (Post-Acute Covid-19 Vaccination Syndrome) – a syndrome with a name but no diagnostic code - patients fall beteen the cracs and health care is not responding.

#USA #Covid19 #mRNA #patientrights #diagnosticcode

nordictimes.com/world/acip-r...

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Association Between COVID-19 Vaccination and Polymyalgia Rheumatica: A Review and Case Series Report

Also read more on the risks of this mRNA technology in the body in the article below.

#informedconsent #patientrights #healthliteracy

www.preprints.org/manuscript/2...

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A woman in labor at Piedmont Henry Hospital says her support team was removed during a dispute over a recommended C-section for a breech baby. She later delivered via C-section, sparking debate over patient rights.#BirthAdvocacy #MaternalHealth #PatientRights

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26 couples in Southern California have sued fertility doctor Dr. Brian Acacio, alleging their embryos were moved without consent and are being withheld. The case raises concerns about medical ethics and patient rights. #IVF #California #Healthcare #Lawsuit #PatientRights

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Hearing on bill to replace 'imminent danger' with 'predictable harm' spotlights court-ordered treatment and legal concerns Representative Tricia Burns told the Committee on Legislative Review that House Bill 25 12 would let courts act earlier by allowing a 'qualified petitioner' to seek court‑ordered long‑acting injectable treatment for people with severe psychotic disorders; opponents warned the measure raises constitutional, clinical and statutory conflicts, citing statutes 632.704 and 632.707 and concerns about forced long‑term injectables.

A bold new bill could change the way we approach mental health treatment by allowing courts to order long-term care for the severely ill, but it raises serious legal concerns.

Read the full story

#MO #LegalIntervention #MissouriPsychiatricCare #CitizenPortal #MentalHealthReform #PatientRights

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RFK Jr. highlights U.S. healthcare’s hidden costs, urging hospitals to post prices after 1,000+ warning letters. He calls for full transparency so patients can make informed decisions.
#RFKJr #HealthcareTransparency #MedicalCosts #USHealthcare #PatientRights #HealthPolicy

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The Merger That Needed A War I need your focus for a few minutes on something that slipped through the noise today, and may not get another window soon.

Excellent investigative journalism!

Do YOU know who has access to your data?

#AI #Privacy #GovernmentOverreach #Data #PrivacyProtection #SurveillanceState #DataAbuse #BigTech #PatientRights #Accountability #PrivacyMatters #GovernmentAccountability

open.substack.com/pub/thedreyd...

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Oregon bill would boost privacy for abortion, trans health care Public News Service (PNS) is a member-supported news service that advocates journalism in the public interest. PNS's network of state-based news services distribute high quality public interest news…

Oregon lawmakers advanced a bill to strengthen privacy protections for patients and providers offering legal reproductive and gender‑affirming care—aimed at keeping personal health information from being shared across state lines.
#HealthPrivacy #Oregon #PatientRights @aclu-or.bsky.social

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Appeals court hears arguments over whether discharge before patient’s death should have gone to jury Appellate counsel in Williams v. PeaceHealth debated whether a trial court improperly granted summary judgment in a wrongful-death suit after a hospital discharge; the estate’s lawyer said conflicting expert opinions create a jury question while defense counsel argued gross negligence was not shown under the Involuntary Treatment Act.

The fate of a wrongful death claim hangs in the balance as an appeals court debates whether a physician's questionable discharge decision led to a tragic outcome.

Click to read more!

#WA #ExpertTestimony #CitizenPortal #PatientRights #GrossNegligence

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Signs Of A Birth Injury In New York | What Parents Should Know Learn the early and delayed signs of a birth injury, including fetal distress, low Apgar scores, seizures, and developmental delays. New York legal guidance.

Emergency C section.
Low Apgar scores.
NICU admission.
Cooling therapy.

These can be warning signs of a preventable birth injury.

If something felt wrong during delivery, the records matter.

#BirthInjury #MedicalMalpractice #NYC #PatientRights

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People in high secure care in Scotland still have rights and independent advocacy helps protect them.
PAS supports people to understand decisions, express their views, and make sure their rights are respected.
#Advocacy #PatientRights #HighSecureCare #PAS

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Common Types of Medical Malpractice: Failure to Diagnose, Informed Consent & More — Robyn Sztyndor Attorney Blog Learn from Robyn Sztyndor about the most common types of medical malpractice, including failure to diagnose, lack of informed consent, failure to treat, and anesthesia negligence — and how these medic...

The many forms of medical malpractice — from failure to diagnose to anesthesia errors.
Know the warning signs?
Learn about the most common types of medical negligence and the impact patients and families.
Read more: www.robynsztyndorattorney.com/blog/common-...
#MedicalMalpractice #PatientRights

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📢 At PAS we’re committed to making sure every person in high secure care has their voice heard.
Independent advocacy protects rights, supports choice and promotes dignity for those facing the greatest restrictions.
#IndependentAdvocacy #PAS #PatientRights

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Panel hears bill to require KDHE consent forms and allow electronic delivery in Women's Right to Know law HB 2729 would require the Kansas Department of Health and Environment to provide the state's Woman's Right to Know consent form (paper or electronic) and amend posted notice language; proponents said standardizing forms strengthens the government's speech defense and eases compliance, while opponents said it preserves unconstitutional and medically unfounded disclosures and could impede patient-provider conversations.

Kansas is debating House Bill 2729, which could standardize consent forms for women's health—but is it a step forward or a step back for patient rights?

Click to read more!

#KS #CitizenPortal #HealthCareAccess #KansasWomensHealth #PatientRights #GovernmentTransparency

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👇 ???? Never had considered this use case before 😶#Speirgorm #Health #PatientRights

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Attorneys, families struggle to find hospitalized ICE detainees Public News Service (PNS) is a member-supported news service that advocates journalism in the public interest. PNS's network of state-based news services distribute high quality public interest news…

When people in ICE custody are hospitalized, families and attorneys say they often can’t find them—or even confirm they’re alive. Advocates warn hospital “blackout” policies can leave detained patients isolated and vulnerable. Collab w/@kffhealthnews.org
#Immigration #Healthcare #PatientRights #ICE

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How Can I Fight a Nursing Home Eviction? I've been in a nursing home for eight months and was told in writing that I have 30 days to leave. How can I file a complaint or appeal?

Nursing home residents have rights — they can only be evicted for specific reasons, must receive written notice, and can appeal the decision. Long‑term care ombudsmen and elder law attorneys can help protect those rights.
www.elderlawanswers.com/how-can-i-fi...

#ElderLaw #PatientRights #Caregiving

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Our client was continuously let down by their dentist, and as a result lost three teeth.

Learn more about what happened in this video... #PatientRights

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Inside LGBTQ+ Health Inequality and the Fight for Inclusive Care New studies uncover the drivers of LGBTQ+ health disparities, from mental health to access to care, and reveal solutions rooted in equity and inclusion.

New research highlights the real causes behind LGBTQ+ health
#LGBTQHealthDisparities #HealthEquityResearch #GenderAffirmingCare #InclusiveHealthcare #MentalHealthAwareness #TransHealth #LGBTQWellness #PatientRights #HealthcareAccess #PublicHealthEquity #AfterDarkTreasures #LGBTQ #WellnessEducation

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House passes bill requiring clinics to give patients written complaint instructions after alleged misconduct HB164 requires medical offices to provide patients with written instructions on how to file professional misconduct complaints; sponsor said the bill was prompted by a constituent who alleged inappropriate conduct and an attempt to secure a nondisclosure agreement.

Utah's House just passed a groundbreaking bill ensuring patients get the info they need to report professional misconduct in medical offices after shocking allegations surfaced!

Click to read more!

#UT #CitizenPortal #ProfessionalConduct #PatientRights #HealthCareReform

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