Heather Valente, PA-C, #PedPC provider @upmc.com Children’s Hospital of Pittsburgh, is on the main stage @aahpm.bsky.social #hapc26 talking about her work developing a statewide #EMS protocol for both adult and pediatric #hospice patients! She’s rocking it and is right where she belongs! ⭐️
Lase Ajayi ( @laseajayi.com) is looking forward to welcoming you as she digs into the policy landscape and the evolving integration of #palliativecare for people living with #SickleCell Disease.
#HAPC26 #PedPC
PPC Webinar on 3/17/26 - The Calm and the Storm: Hypothermic Dysautonomia Through a Palliative Care Lens. Dr. Vallely will review the pathophysiology of "cold" storming in children with SNI & discuss dynamic goals assessment.
www.ppcwebinars.org
#pedpc #pedspc #hapc #hpm
There's still time to register for our first PPC Webinar of 2026!
This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding & goals of care.
Register and learn more at www.ppcwebinars.org
#pedpc #pedspc #hapc #hpm
Join us January 22nd for our first PPC Webinar of 2026!
This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding and goals of care.
Register and learn more at www.ppcwebinars.org
#pedpc #pedspc #hapc #hpm
Register for the Nov 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System.
Dr. Chrissy Salley, from @CourageousCPN will facilitate a panel discussion among a group of fathers.
mailchi.mp/ppcc-pa/regi...
#pedpc #pedspc #hapc #hpm
two pediatric palliative care providers dressed as rainbow unicorns in front of the MSK KIDS sign
Pediatric Palliative Care = Rainbow Unicorns.
We honestly aren't even in costume. Just expressing our inner true selves.
@mskcancercenter.bsky.social
#halloween #pedpc #hapc
Register for today's PPC Webinar - Using Photo-Narratives to Enhance Humanistic Care.
In this webinar, presenters will explore what photo-narratives are and how they have been used in serious illness care for children and families.
mailchi.mp/ppcc-pa/regi...
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#pedpc #pedspc #hapc #hpm
Text message screen shot Do you feel like you're trying to move a mountain or find a magic path? Welcome to palliative care!
After years of listening and learning from rare families and clinicians, Courageous Parents Network is excited to announce the launch of an updated digital presence!!
Take a look around and let us know what you think! Email us at Connect@CourageousParentsNetwork.org
#pedpc #pedatrics #raredisease
Join us for a 3-part Deeper Dive into Ethics in Perinatal and Neonatal Care with presenters, Dr. Brian Carter, Dr. Christopher Collura and Dr. Robert Macauley.
October 3rd, 10th and 17th, 12pm ET.
www.tfaforms.com/5164780
#pedpc #pedspc #hapc #hpm #medicine #neonatal #perinatal
#hapc
#hapcSOTS23
#HAPCselfie
#HPMparty
#HAPCbaby
#HAPCfoodie
#hpmClassof23
#hapcRookie23
#pedPC
#pallonc
#palneph
#palCV
#Neuropal
#LiverPal
#PrognosisScience
Trailer for “The Soft Surrender” by Randy Bacon.
vimeo.com/1110046265
#hapc
#hapcSOTS23
#HAPCselfie
#HPMparty
#HAPCbaby
#HAPCfoodie
#hpmClassof23
#hapcRookie23
#pedPC
#pallonc
#palneph
#palCV
#Neuropal
#LiverPal
#PrognosisScience
A drug was just approved to treat diffuse midline glioma (which includes DIPG) - a universally fatal pediatric brain cancer. It’s not a cure, but studies show it can extend life in some patients for many months. There has never been an approved treatment before. #cansky #pedpc #hapc 🧵 1/
"Episode 40: Nonfiction" is here!
Dan and Sarah welcome back Dr. Bob Macauley and Dr. Chris Adrian to discuss writing about #pedpc (Bob's new book in particular: bookshop.org/p/books/beca...), and how narrative, personal trauma, and clinical practice intersect.
CW: discussion of child sexual abuse
🌟 New #PhD Scholarship Available! 🌟
This is your opportunity to join a new Centre of Research Excellence in #PaediatricPalliativeCare, exploring consumer preferences for care models and making a real impact on the lives of children and families.
👉 Find out more and apply: bit.ly/3T2FiAp #PedPC
Happy to share this important work by colleague Ximena Garcia-Quintero and her colleagues! #HAPC #SWHPN #PedPC thanks, Rick for the heads up
Friday 5/23 NTY crossword 41 across is very palliative. #hapc #pedpc #nytcrossword
In case you missed it: PediPal rides again!
Now with 100% more disclosures of one host's personal health information.
But, y'know, in a way that's relevant to pediatric palliative care. #pedpc
We are so lucky that @emilytammam.bsky.social is one of our parent PPI members. I was never fortunate enough to meet Neve but am very grateful to Emily for her generous sharing of her writing and painting. Please read. #pedpc
If you are not a medical #SocialWorker but you manage them, please know that we ground our practice in professional ethics and values issued by The National Association of Social Work (NASW). #SWHPN25 #SWHPN #HAPC25 #HAPC #HAPCSW #PedPC #PedPCSW #HAPCSW
…which in turn increases risk of a number of diseases, heart disease among them."
Marmot (2004, 68-75)
#SWHPN25 #SWHPN #HAPC25 #HAPC #HAPCSW #PedPC #PedPCSW #HAPCSW
A great question to assess about any #HAPC or #PedPC consult: is the consulting team asking your team to advocate/work for the patient and family’s needs and wishes or for what the consulting team wants? I.e. “get the DNR”, sign them up for hospice, etc. #HAPC25 #HAPC #HAPCSW #PedPC #PedPCSW #HAPCSW
The Theory of Change map developed explains the causal pathway for successful implementation of outcome measurement in #pedpc. We then consulted with a Young Person’s Advisory Group #PPI and study steering group to inform development of initial implementation strategies (3/8)
I’m excited to share the third and final paper from my #PhD: Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care. #pedpc Published in @palliativemedj.bsky.social journals.sagepub.com/doi/10.1177/... 1/8🧵
Let’s lend a had to our colleagues in Ukraine working under extreme conditions every day. #HAPC #SWHPN #Pedpc
Healthcare advance directives can support a family's goals and wishes. Join Founders of Advance Conversations IN THE ROOM on 3/24 at 8 p.m. ET
Register: courageousparentsnetwork.org/events/suppo...
#advancedirective #pedpc
Endorsed by the International Children's Palliative Care Network, St. Jude Global Palliative Care, and Stanford School of Medicine, the handbook, edited by Dr. Megan Doherty is available as a free download. #hapc #PedPC #spiritualcare twoworldscancer.ca/resources
