I am proud to support @mndassoc.bsky.social and their #PrescribeLife campaign.

Some people with SOD1 #MND, 2% of cases, still can't access tofersen and I am backing calls for the Government to find a solution.

You can learn more about the campaign here:
www.mndassociation.org/get-involved...

#MND #Tofersen #PrescribeLife

Over 19,000 people have already signed our #Tofersen petition - but we're trying to get still more support for people with SOD1 #MND.

Here's a flyer that can be printed and taken to @mndassoc.bsky.social and other events to encourage even more people to support the petition 👇 #Prescribelife

#MND #tofersen #prescribelife

Why we’re campaigning on tofersen again Tofersen is a new treatment that is effective for the roughly 2% of people with MND who have a particular genetic change.

Why is #tofersen our number one #mnd campaign right now? Read on to find out more and take action! #prescribelife

www.mndassociation.org/media/latest...

#MND #Tofersen #Prescribelife

11 reactions | "Every day I wait. More of my independence is lost." Watch Seckin McGuirk, who is living with SOD1 MND, speak about the importance of accessing... | By MND Campaigns | Facebook "Every day I wait. More of my independence is lost." Watch Seckin McGuirk, who is living with SOD1 MND, speak about the importance of accessing...

"Every day I wait. More of my independence is lost."

Watch Seckin McGuirk, living with SOD1 #MND, speak about the importance of accessing #tofersen.

www.facebook.com/mndcampaigns...

And if you haven't already, please sign the #Prescribelife petition here: act.mndassociation.org/2025-prescri....

I’ve signed. We need your help!
#mnd #prescribelife @mndassoc.bsky.social

Thank you Tonia Antoniazzi - not the response we'd hoped for from UK Government but we'll keep calling for everyone who needs it to have access to tofersen.

Sign the petition here: act.mndassociation.org/2025-prescri...

#tofersen #MND #Prescribelife

We made it - onwards to 7,000! #mnd #tofersen #prescribelife

Less than 150 signatures to go till we get to 6,000 names supporting access to #tofersen - thank you so much for all your help!

Let's get this petition to the next milestone #mnd #prescribelife

We need your help to get the Government to bring tofersen to everyone with SOD1 MND who needs it - please sign and share the petition! #mnd #prescribelife

act.mndassociation.org/2025-prescri...

I've signed the #PrescribeLife petition. Will you sign too?
Motor neurone disease (#MND) is fatal. But #tofersen, a groundbreaking treatment, could change that for some people. We want it to be given the best chance of being made available on the NHS. mndassoc.org/40jVN03