#rarediseases are not always visible, so #colourUp4RARE ! More #research is needed to develop new diagnostic and treatment options and to ensure reliable care. The BLACKSWAN Foundation, with #ProRaris, was in Bern to show our colours. #RAREvolution #RareDiseaseDay #ShareYourColours

Rare diseases legislation Rare diseases present a major challenge to those affected and to the Swiss health system. On 12 September 2025 the Federal Council put a new federal act out for consultation, which is intended to improve the conditions for the implementation of measures to tackle rare diseases.

FINALLY #Switzerland is actively taking steps to address #rarediseases. The #FederalCouncil is tasked with improving conditions for tackling rare diseases and establishing a foundation for the sustainable funding of efforts to collect, process, and share health information. #RAREvolution #ProRaris