Great day at @raredisorders #CORDconf17! I met so many amazing people (patients, MDs, researchers, fam's, etc). #inspiring #energy #RDD2017

Dr. Anne Junker @micyrn explaining importance of network. Children's Oncology as an example. #RDD2017 @BCChildrensHosp @raredisorders

First patient panel at the @raredisorders #RDD2017 Conference w\ Chris Black, Rick Waimea, @seastarbatita & @DempseyKarolena. Powerful!

Pretty cool addition to the @raredisorders conference. Can't wait to seesaw this evolves over the next two days! #RDD2017

Conference underway! @Durhane getting things started! @raredisorders #rdd2017 #care4rare