"Even the rarest conditions deserve the loudest voices and the deepest commitment to progress." ~Unknown
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⭐️Best PPI Poster⭐️
Congratulations to Eva Woods and her team for winning best PPI poster...❤️
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Ms Sarah Forde from the Rare Disease Clinical Trial Network discussing her Clinical Trial Identification Project Overview
❤️
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The last Panel Discussion Chaired by:
Dr Linda O’Neill and Professor Bruce Trapnell
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Study Within a Trial (SWAT) was delivered by Professor Valerie Smith.
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Dr Leanne Hays spoke about Platform Trials.
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Dr Declan O’Rourke led the Clinical Trial Spotlight on Duchenne Muscular Dystrophy – DYNE-DELIVER (A Paediatric Muscular Disorder). This trial study is the first of its kind in Ireland.
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And then the emotions began...😢
Thank you Sarah...❤️
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Ms Emer Cooke delivering her Regulatory Perspective on building patient relationships within the medicine regulatory process.
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The amazing Cassy from the Rare Disease Clinical Trial Network thanking all the Patient Collaborators for their hardwork towards the Conference.
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The amazing Cassy from the Rare Disease Clinical Trial Network thanking all the Patient Collaborators for their hardwork towards the Conference.
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Clinical Trial Spotlight: Autoimmune Pulmonary Alveolar Proteinosis-IMPALA 2 (Lung Diseases) was led by Professor Elisabeth Bendstrup
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Great panel discussion chaired by Dr Fiona Browne and Dr Kyrylo Lebed.
A rare disease patient rightly pointed out the challenges of data registry being captured from different hospitals.
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Professor Sinéad Murphy speaking on the Rare Neurological Disease Registry and the key milestones.
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Dr Sinéad Hickey and Ms Lara Cutlar discussing a rare skin condition called Epidermolysis Bullosa (EB) and expanding the Registry.
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