David Curren, patient advocate and board member for Breath of Hope Rhode Island, discusses his grandson’s diagnostic journey with idiopathic pulmonary hemosiderosis.

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#CheckRare #RareLung #IPH

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🚨 Clinical Trial Spotlight: IMPALA 2 🚨

Prof Elisabeth Bendstrup (Aarhus University) presents on Autoimmune Pulmonary Alveolar Proteinosis & IMPALA 2 – a game-changing trial for this rare condition! #RareDiseaseTrials #RareLung

Register here: www.eventbrite.ie/e/...

Savara Therapeutics has announced a new diagnostic test for autoimmune pulmonary alveolar proteinosis (aPAP).

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#CheckRare #RareLung #aPAP

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🌬️ ERN Lung Registries & Academy 🌬️

During Session One: European Reference Network Registries, Ms Elisabeth Humbert-Dorfmüller (ERN Lung) will showcase the ERN Lung Registries & Academy, supporting #RareLung research.

📅 Sign up: www.eventbrite.ie/e/...

PAH Clinical Research Highlights: CHEST 2024 Jean Elwing discusses PAH research leading to better management of people with Pulmonary Arterial Hypertension

📢CME Program: Jean Elwing, MD, of the University of Cincinnati College of Medicine provides an overview of the latest clinical research about PAH presented at CHEST 2024.

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#CheckRare #RareDisease #RareLung #CMEProgram