Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Join us Wednesday, 25th February, 2-4pm in the European Parliament for a meeting of the MEP Interest Group on Brain Health and Neurological Conditions, kindly co-organised by MEP Ondřej Dostál, Czechia.
Register here:👇
https://www.efna.net/mep-february26/

#BHNCevent #rareneurology #rarediseaseday

Stay informed: Whether you’re a clinician, patient, carer, or patient representative, our ERN-RND #newsletter is your go-to source for the latest updates on Rare Neurological Diseases in Europe: www.ern-rnd.eu?mailpoet_rou...

#RareDisease #RareNeurologicalDisease #Neurology #RareNeurology

Paroxysmal Choreoathetosis Market Size, Growth Outlook 2035 Paroxysmal Choreoathetosis Market growth is projected to reach USD 450.0 Billion, at a 7.3% CAGR by driving industry size, share, top company analysis, segments research, trends and forecast report 20...

🧠 Targeting rare movement disorders! Novel therapies for choreoathetosis are reshaping neurology care.
#RareNeurology #PatientCare #PharmaResearch

www.marketresearchfuture.com/reports/paro...

Erin Sullivan, Executive Director of Sisters’ Hope Foundation, discusses her family’s experience with adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP).

checkrare.com/a-familys-ex...

#CheckRare #ALSP #RareNeurology #RareGenetic #Disease

💡Rare Disease Spotlight: SYNGAP1-Related Disorders

Learn more about this rare disease with our latest article checkrare.com/the-current-...

#CheckRare #RareDisease #SYNGAP1 #RareNeurology #RareGenetic

Yuri Maricich, MD, Chief Medical Officer of CAMP4 Therapeutics, discusses the company’s current drug development programs.

checkrare.com/camp4-therap...

#CheckRare #RareNeurology #RareMetabolic #UCD #SYNGAP1

Norman Putzki, MD, Global Development Head of Neuroscience and Gene Therapy at Novartis, discusses positive safety and efficacy data for OAV101 IT, an investigational gene therapy for spinal muscular atrophy (SMA).

checkrare.com/positive-saf...

#CheckRare #SMA #RareNeurology #RareMusculoskeletal

Sonia Gobeil, co-founder of Ataxia of Charlevoix-Saguenay Foundation, discusses their organization and ongoing research for autosomal recessive spastic ataxia of Charlevoix-Saguenay (ARSACS).

checkrare.com/ongoing-rese...

#CheckRare #RareNeurology #RareMusculoskeletal #ARSACS

FDA Approves Myasthenia Gravis Treatment Nipocalimab The U.S. Food and Drug Administration (FDA) has approved Imaavy (nipocalimab) for the treatment of generalized myasthenia gravis (MG).

The U.S. FDA has approved Imaavy (nipocalimab) for the treatment of generalized myasthenia gravis.

checkrare.com/fda-approves...

#CheckRare #FDAApproval #MyastheniaGravis #RareNeurology #RareMusculoskeletal

Sindhu Ramchandren, MD, Johnson & Johnson, discusses updated results from the Vivacity-MG3 clinical trial in patients with generalized myasthenia gravis (MG).

checkrare.com/efficacy-of-...

#CheckRare #RareNeurology #MyastheniaGravis

Aravindhan Veerapandiyan, MD, discusses results from the phase 1/2 EXPLORE44 clinical trial for Duchenne muscular dystrophy (DMD).

checkrare.com/results-from...

#CheckRare #RareMusculoskeletal #RareNeurology #RareGenetic #DMD #Duchenne #RareDisease

Cancers There are over 200 different types of rare cancers, but only a small number of people are diagnosed with each type.

💡Rare Disease Spotlight: ALS

Learn more about this rare disease with our latest article checkrare.com/diseases/can...

#CheckRare #RareDisease #ALS #RareMusculoskeletal #RareNeurology

Alan Percy, MD, Pediatric Neurologist at the University of Alabama at Birmingham, discusses results from the DAFFODIL study evaluating long-term safety of trofinetide in girls ages two to four years with Rett syndrome.

checkrare.com/long-term-sa...

#CheckRare #RettSyndrome #RareNeurology

💡Rare Disease Spotlight: Sanfilippo Syndrome Type A

Learn more about this rare disease with our latest article checkrare.com/gene-therapy...

#CheckRare #RareDisease #MPSIIIA #RareNeurology

Results From the Phase 3 Vivacity-MG3 Study in Myasthenia Gravis Carlo Antozzi, MD, discusses results from the phase 3 Vivacity-MG3 study of nipocalimab in antibody positive adults with MG.

Carlo Antozzi, MD, discusses results from the phase 3 Vivacity-MG3 study of nipocalimab in antibody positive adults with generalized myasthenia gravis (MG).

checkrare.com/results-from...

#CheckRare #MyastheniaGravis #RareNeurology #RareMusculoskeletal

Missed last week's meeting of the MEP Interest Group on Brain Health & Neurological Conditions? No problem, you can watch a reply of the event on our YouTube Channel now: youtu.be/1Zr0zm8ILO0?...
#RareDiseaseDay #RareNeurology

Tomorrow is #RareDiseaseDay & we'll be marking the day by sharing some facts about the impact of rare neurological conditions. You can get involved by sharing your story with the #rarediseaseday and #rareneurology hashtags. You'll find lots of resources at www.rarediseaseday.org/downloads/

Topline Results of the Honeycomb Trial for GRIN-related Neurodevelopmental Disorders Michael Panzara, MD, discusses topline results of the Honeycomb trial for GRIN-related neurodevelopmental disorder with Go) variants.

Michael Panzara, MD, discusses topline results of the Honeycomb trial for GRIN-related neurodevelopmental disorder with GoF variants.

checkrare.com/topline-resu...

#GRINDisorders #RareNeurology #ClinicalTrials