One last time #RareNeurologicalDisease news and events in 2025! Stay up to date with the latest developments in rare neurological disorders — including #HuntingtonDisease, #HSP, #Dystonia, #MSA, #Leukodystrophies, #FrontotemporalDementia — with our monthly newsletter: https://f.mtr.cool/nvtixiqcex
Stay informed: Whether you’re a clinician, patient, carer, or patient representative, our ERN-RND #newsletter is your go-to source for the latest updates on Rare Neurological Diseases in Europe: www.ern-rnd.eu?mailpoet_rou...
#RareDisease #RareNeurologicalDisease #Neurology #RareNeurology
It's time for #RareNeurologicalDisease #news: this month with a video #interview on developing a guideline on NKX1-2-related disorders, 3 updated #PatientJourneys and a lot of surveys, workshops, congresses and symposia! Read our #newsletter here: www.ern-rnd.eu?mailpoet_rou...
Join our Scientific Symposium on "European Healthcare for RND Patients" on October 28 online! Free registration: us02web.zoom.us/webinar/regi...
Find the programme here: www.ern-rnd.eu/wp-content/u...
#HealthcareEU #Neurology #RareDisease #RareNeurologicalDisease #Symposium
Get your #RareNeurologicalDisease updates every month with our #newsletter and don't miss out on news on the network, free webinars and winter schools, participation calls, new publications, events and many more. Find our newsletter here and subscribe (bottom): www.ern-rnd.eu?mailpoet_rou...
#RareNeurologicalDisease news for April are out! Check out our monthly #newsletter and stay updated on diseases like #Dystonia, #Leukodystrophy, #HuntingtonDisease or #FrontotemporalDementia (FTD) - in this issue: a new care standard for pharmacotherapy for #FTD www.ern-rnd.eu?mailpoet_rou...
A slide with a photo of the speaker and the title of the talk
🧠 Rare Neurological Disease Registry 🧠
In celebration of #BrainAwarenessWeek, we’re highlighting Prof Sinéad Murphy (Tallaght University Hospital, Trinity College Dublin) who will present on an RND registry. #RareNeurologicalDisease
📅 Register here: www.eventbrite.ie/e/...
