Join the community in coming together to raise awareness for #RareDiseaseDay2026 at our Joint Nation online event on Thursday 5 March, at 10.00 - 12.00. Register your place now: www.eventbrite.co.uk/e/rare-disea...

#RareDiseaseDay #RDD2026 #Rarequity

Rare Disease Day: Prevention can be the most powerful treatment of all Dan O’Connor reflects on the need for greater investment in prevention, as well as the need for equity, for this year’s Rare Disease Day.

🚨New: Blog from our colleague Dan O'Connor for #RareDiseaseDay: Prevention can be the most powerful treatment of all.

A timely read highlighting why equity & prevention are vital. @geneticallianceuk.bsky.social

🔗 Read more: www.abpi.org.uk/media/blogs/...

#RareDiseaseDay2026 #rarequity

Our colleague Dan O'Connor attended the packed @geneticallianceuk.bsky.social Rare Disease Day event yesterday. 🧑‍🤝‍🧑

Great to see so many people calling for equity for rare diseases.

Download the @geneticallianceuk.bsky.social's advocacy pack 👉http://bit.ly/4rp81yB

#rarequity #RareDiseaseDay

There's only one week to go until #RareDiseaseDay. Did you know that only 1 in 20 rare conditions have an approved treatment or medicine? With there being over 7,000 identified rare conditions, that leaves thousands of conditions with no available treatments.

#Rarequity

Did you know 1 in 17 people will be affected by a rare condition at some point in their lives?

Take a look around you and have a think about how many people that really is! Help us spread the word so changemakers know why they should #CareForRare.

#RareDiseaseDay #Rarequity