Did you know 1 in 17 people will be affected by a rare condition at some point in their lives?
Take a look around you and have a think about how many people that really is! Help us spread the word so changemakers know why they should #CareForRare.
#RareDiseaseDay #Rarequity
Rare disease day logo on colourful background with text "70% of genetic rare diseases start in childhood #rarediseaseday rarediseaseday.org, Article "Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database", European Journal of Human Genetics (2019)"
DYK 70% of genetic rare diseases start in childhood? For many, chronic pain is a daily struggle. This #RareDiseaseDay, we’re raising awareness and advocating for better pain management.🌟Keep reading for helpful resources! ⬇️
#CareForRare #ItDoesntHaveToHurt
#ShowYourStripes for Rare Disease Day! Raise awareness and show your support by taking part in the Medics for Rare Disease #ShowYourStripes campaign. Post a photo of your stripey socks with the hashtag #ShowYourStripes and tag @MedicsForRare. With your photo, why not share your story of living with Addison’s disease or adrenal insufficiency? Tag us in your posts and we’ll share them with our incredible rare disease community to raise awareness and show you are not alone. Wear your stripes to care for rare.
Today is the day to #ShowYourStripes! So raise awareness & show your support by taking part in
@medicsforrare.bsky.social campaign 🦓
🧦 Post a snap of your stripey socks with the hashtags #ShowYourStripes for #RareDiseaseDay & share your story. Wear your stripes to #CareForRare! (7/9)
🧬 95% of rare diseases have no treatment. This Rare Disease Day, we’re working to change that by accelerating breakthroughs—40 new treatments by 2034—through world-class research & drug development.
Learn more: tinyurl.com/2ab5zecf
#RareDiseaseDay #CareForRare www.youtube.com/watch?v=sKEf...
Whatever it is, find your dazzle (group of zebras 🦓 the mascot of rare disease) and know you are NEVER alone!
#RareDiseaseWeek #OntheHill #TelomereBiologyDisorders #TeamTelomere #RareDiseaseDay #CareforRare #TBDResearch
@cafsociety February is Rare Disease Month. This month, we're showing we #CareForRare by sharing stories about how rare rheumatic diseases affect children, teens, and young adults across Canada.
February is #RareDisease awareness month.
#CAFSociety #CassieAndFriends support children, teens, young adults, and their families - living with rare rheumatic diseases - across Canada. 🇨🇦
#CareForRare
cassieandfriends.ca
