A raspberry slide announcing “New Publication! "20 Years of SMA Europe: From firefighting to future-building" SMA Europe's 20 Years Together logo is positioned in the top left corner.

A raspberry colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

From kitchen-table volunteer work to a 1,000+ person global Congress, SMA Europe’s 20-year journey shows the power of community. 💜 A new Rare Revolution Magazine feature reflects on progress, access, research, and why the work continues. 

🔗 https://bit.ly/4c8bsFg
#SMACongress2026 #WeAreOne

Budapest reunion! 🥳🤩At the Global SMAdvocacy Event, 70 patient advocates from over 40 countries around the world joined forces and strategised towards a better world for people living with SMA.

Thank you ALL who joined! 💜
All together. One goal.

#WeAreOne #smacongress2026 #smaawareness

During #5thInternationalScientificCongressonSpinalMuscularAtrophy, Budapest illuminated iconic landmarks in support of the SMA community ✨

Including Puskás Aréna, MVM Dome & Millenáris Széllkapu Park.

A powerful symbol of unity and awareness 💜 
#WeAreOne #SMA #SMACongress2026

A person with long hair and glasses is seated in a chair, wearing a black top. Next to them is a speech bubble containing text about their experience with SMA type 2 and referencing their older sibling with Lennox-Gastaut syndrome. The words "Seda Karakaya," "linguist and graphic designer who has SMA type 2," and "SMACongress2026" are visible. At the bottom, "Rare Disease Advisor" is displayed with a logo.

#SMACongress2026: Seda Karakaya, 29, from the Turkish city of Kayseri. Karakaya, a linguist and graphic designer, has SMA type 2. She spoke Mar. 13, 2026, at the 5th International Scientific Congress on SMA (@sma-europe.bsky.social) in Budapest, Hungary.

#RareDisease #SpinalMuscularAtrophy #SMA

A person smiles in a busy indoor environment. A large quote beside them reads, "His top wish is to attend school. He understands that bullying would be part of the experience. He wants to be scolded by the teacher and sent to detention. He just wants to be a normal kid." The text identifies the speaker as Sook Yee Yip, mother of 16-year-old Branden Lim, who has SMA type 1. The image includes the Rare Disease Advisor logo and hashtag #SMACongress2026.

#SMACongress2026: Sook Yee Yip of Kuala Lumpur, Malaysia, and mother of 16-year-old Branden Lim, who has SMA type 1. She spoke March 13, 2026, at the 5th International Scientific Congress on SMA (@sma-europe.bsky.social) in Budapest, Hungary.

#RareDisease #SpinalMuscularAtrophy #SMA

A person with short hair and glasses is smiling, overlaid with a quotation about spinal muscular atrophy treatment progress in Europe compared to the U.S. The quote is in a blue and white color scheme. Text includes the name "Kathryn Swoboda, MD, Neurologist and Rare Disease Specialist." The image features branding for Rare Disease Advisor and a hashtag #SMACongress2026.

#SMACongress2026: Kathryn Swoboda, MD, an American neurologist and rare disease specialist who’s been working on #SMA for nearly 30 years, speaking Mar. 13, 2026, at the 5th International Scientific Congress on SMA @sma-europe.bsky.social in Budapest, Hungary.

#RareDisease #SpinalMuscularAtrophy

Looking forward to continued collaboration and progress in SMA research. Together, we shine! 🌟

Huge thanks to @sma-europe.bsky.social for the amazing congress!

#SMAcongress2026 #SpinalMuscularAtrophy

The image features a speaker at a podium with the SMA Europe logo behind them. A quote box highlights a statement about the study of SMN deficiency's impact on metabolism, emphasizing the importance of personalized nutrition for improving treatment in SMA. Alessandro Usiello, PhD, is identified as a professor at the University of Campania Luigi Vanvitelli. The image includes the Rare Disease Advisor logo and the hashtag #SMACongress2026.

#SMACongress2026: Alessandro Usiello, PhD, Professor of Clinical Biochemistry at the University of Campania Luigi Vanvitelli in Caserta, Italy. Dr. Usiello spoke March 13, 2026, at the 5th International Scientific Congress on SMA (@sma-europe.bsky.social) in Budapest, Hungary.

#RareDisease #MedSky

SMA congress in Budapest

And we’re up and running with the main @sma-europe.bsky.social congress here in Budapest 👍 #SMACongress2026

Looking forward to this important workshop, led by the irrepressible Giovanni Baranello #SMACongress2026

If you’re also at the meeting (and on BlueSky) please use #SMACongress2026 to help everyone find your posts

Budapest will light up for the SMA community during the 5th International Scientific Congress on SMA! 
📅 11 March 2026
📍 Puskás Aréna
📍 MVM Dome
📍 Millenáris Széllkapu Park
Get ready to witness the SMA Europe glow across Budapest! ✨

#WeAreOne  #SMACongress2026 #GlowForACause #SMA

A blue slide announcing “New Publication! 5th International Scientific Congress on Spinal Muscular Atrophy (SMA)" published by Rare Revolution Magazine.” SMA Europe's 20 Years Together logo is positioned in the top left corner.

A blue colour slide featuring the SMA Europe logo, #WeAreOne and #SpinalMuscularAtrophy hashtags, and the SMA Europe website link: www.sma-europe.eu.

Thank you to Rare Revolution Magazine for featuring our 5th International Scientific Congress on SMA! From science to advocacy, innovation meets collaboration. 
🔗 Read more: https://bit.ly/4l7dFU3 
🔗 Congress info: https://bit.ly/4bircVs
#SMA #SMACongress2026 #WeAreOne

📢 The SMA Congress 2026 App is now live!

Plan your schedule, connect with attendees, and receive real-time updates — all in one place.

📲 Download it from the App Store or Google Play by searching “SMA Congress 2026” or use the link: https://www.nunify.com/share/SMACONGRESS2026

#SMACongress2026