Read about Finkel type SMA and connect with those who understand: https://bit.ly/4mGf9Ef
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Hashtag
#SpinalMuscularAtrophy
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"THIS IS AMAZING"
@martinbagot.bsky.social for @mirror.co.uk
Former #LittleMix singer #JessyNelson has praised #NHS decision to start testing newborn babies for #SpinalMuscularAtrophy (#SMA), after #WesStreeting (UK Health Secretary) fast-tracked screening plans.
#DailyMirror
#TomorrowsPapersToday
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Understand how electromyography helps in SMA diagnosis and care: https://bit.ly/4oAJead
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Explore specialized equipment that supports daily life with SMA: https://bit.ly/45KfTmh
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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The @fda.gov has approved a high-dose regimen of #Nusinersen (#Spinraza®) for the treatment of spinal muscular atrophy (#SMA) in pediatric and adult patients, Biogen announced.
Learn more: https://bit.ly/4s7yn8e
#RareDisease #SpinalMuscularAtrophy #MedSky
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Join an SMA home journey—connect and learn from others about moving and adapting: https://bit.ly/4oSGjdd
#SMA #SMACommunity #RareDisease #SpinalMuscularAtrophy #SMANewsToday #Bionews
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Find adaptive clothing ideas that make SMA life more comfortable: https://bit.ly/45uFRZI
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Find options and advice for treating scoliosis in SMA: https://bit.ly/4mC3FSd
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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🏆 Scotland has become the first country in the UK to roll out newborn screening for Spinal Muscular Atrophy (SMA) — a major step forward in early diagnosis and treatment.
#CIL #cilmkt #ukisotope #NewbornScreening #SMA #SMAUK #SpinalMuscularAtrophy #SMAAwareness #HealthcareInnovation #Diagnostics
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Discover insights and experiences about SMA type 0: https://bit.ly/3HpoLVe
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Discover how spinal cord stimulation can support SMA care goals: https://bit.ly/4oEYlj2
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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#GeneticTesting #Scotland
This is an excellent use of genetic testing since finally there are treatments early on that make a difference for kids who have #SpinalMuscularAtrophy (SMA)
bsky.app/profile/rank...
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Scotland becomes first part of UK to screen newborns for spinal muscular atrophy #Science #HealthandMedicine #Genetics #NewbornScreening #SpinalMuscularAtrophy #PublicHealth
www.theguardian.com/uk-news/2026/mar/23/scot...
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Share your best SMA moving tips and discover ideas for successful transitions: https://bit.ly/4lN8K9F
#SMA #SMACommunity #RareDisease #SpinalMuscularAtrophy #SMANewsToday #Bionews
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Read about SMA and liver health to help you stay informed and proactive: https://bit.ly/4mFV8xO
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Understand SMA genetics and connect with others who’ve been there: https://bit.ly/4ozRhE4
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Find practical tips for flying with SMA and a wheelchair with less stress: https://bit.ly/4mAfxEo
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Get amusement park tips from the SMA community for a fun, smooth trip: https://bit.ly/45NfYWh
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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A person with long hair and glasses is seated in a chair, wearing a black top. Next to them is a speech bubble containing text about their experience with SMA type 2 and referencing their older sibling with Lennox-Gastaut syndrome. The words "Seda Karakaya," "linguist and graphic designer who has SMA type 2," and "SMACongress2026" are visible. At the bottom, "Rare Disease Advisor" is displayed with a logo.
#SMACongress2026: Seda Karakaya, 29, from the Turkish city of Kayseri. Karakaya, a linguist and graphic designer, has SMA type 2. She spoke Mar. 13, 2026, at the 5th International Scientific Congress on SMA (@sma-europe.bsky.social) in Budapest, Hungary.
#RareDisease #SpinalMuscularAtrophy #SMA
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A person smiles in a busy indoor environment. A large quote beside them reads, "His top wish is to attend school. He understands that bullying would be part of the experience. He wants to be scolded by the teacher and sent to detention. He just wants to be a normal kid." The text identifies the speaker as Sook Yee Yip, mother of 16-year-old Branden Lim, who has SMA type 1. The image includes the Rare Disease Advisor logo and hashtag #SMACongress2026.
#SMACongress2026: Sook Yee Yip of Kuala Lumpur, Malaysia, and mother of 16-year-old Branden Lim, who has SMA type 1. She spoke March 13, 2026, at the 5th International Scientific Congress on SMA (@sma-europe.bsky.social) in Budapest, Hungary.
#RareDisease #SpinalMuscularAtrophy #SMA
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A person with short hair and glasses is smiling, overlaid with a quotation about spinal muscular atrophy treatment progress in Europe compared to the U.S. The quote is in a blue and white color scheme. Text includes the name "Kathryn Swoboda, MD, Neurologist and Rare Disease Specialist." The image features branding for Rare Disease Advisor and a hashtag #SMACongress2026.
#SMACongress2026: Kathryn Swoboda, MD, an American neurologist and rare disease specialist who’s been working on #SMA for nearly 30 years, speaking Mar. 13, 2026, at the 5th International Scientific Congress on SMA @sma-europe.bsky.social in Budapest, Hungary.
#RareDisease #SpinalMuscularAtrophy
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Read about SMA and cancer in families—join our supportive space for sharing: https://bit.ly/3UMtiUD
#SMA #SMACommunity #RareDisease #SpinalMuscularAtrophy #SMANewsToday #Bionews
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Looking forward to continued collaboration and progress in SMA research. Together, we shine! 🌟
Huge thanks to @sma-europe.bsky.social for the amazing congress!
#SMAcongress2026 #SpinalMuscularAtrophy
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Learn how SMA is diagnosed and hear others’ diagnostic journeys: https://bit.ly/45McKlU
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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See how whole-body vibration therapy can support SMA strength: https://bit.ly/4oyBg1h
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Explore equipment that makes daily life with SMA easier and safer: https://bit.ly/4oB1Kiy
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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Find ways to manage SMA sleep challenges for better nights ahead: https://bit.ly/4mGERIW
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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ARRCT | Open Access
Treatment expectations and meaningful outcomes in spinal muscular atrophy explored using the Goal Attainment Scale.
🔗 www.archives-rrct.org/article/S2590-1095(26)00...
#ARRCT #OpenAccess #SpinalMuscularAtrophy #PatientCenteredCare #OutcomeMeasures #ACRM
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Find inspiration for adaptive living with SMA—share your transformations and tips: https://bit.ly/45OsweW
#SMA #SMACommunity #RareDisease #SpinalMuscularAtrophy #SMANewsToday #Bionews
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Discover SMA life expectancy insights and stories of living fully: https://bit.ly/3Ut1aWC
#SMA #SpinalMuscularAtrophy #SMANewsToday #Bionews #RareDisease
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