Hepatobiliary Cancer Nurse Specialist Stories Stories from nurses working in specialist roles supporting patients and families affected by hepatobiliary cancers

For National CNS day in 2019 I worked with fabulous HPB nurses specialists who shared their stories of working with patients and families affected by pancreatic cancer

This was a small part of #sethslegacy

Here’s the link to the showcase

vimeo.com/showcase/106...

Great to spend world cancer day at the National Cancer Audit Collaborating Centre event as chair of the involvement group for pancreatic cancer audit collaboration debate and differing perspectives all part of #sethslegacy

A huge thank you to everyone who has supported #sethslegacy in 2025 heres to more in 2026 merry Christmas

Tomorrow we'll be sharing a recording of a 30-minute live performance of Holding On ONLINE at 7pm . We'd love for you to join us!

Please visit this link for further information and to register: shorturl.at/pr3P8

#griefawarenessweek #sethslegacy

Great work @ashaniweerratna thank you for all the patients and families affected #sethslegacy

Take read of the stats for pancreatic cancer from @CRUK_Policy to understand the impact of pancreatic cancer and you can also find out
more here #sethslegacy cancerresearchuk.org/health-profess…

Today’s random purple photos are purple nails #sethslegacy

I hope so that breakthrough is vital #sethslegacy

Thank you pancreatic cancer uk for my awareness raising packs I am
ready for November and awareness month healthcare professionals order yours here shop.pancreaticcancer.org.uk/collections/... #sethslegacy

Order using the link shop.pancreaticcancer.org.uk/collections/... #sethslegacy

November is pancreatic cancer Awareness
Month join in and order your awareness raising pack from @PancreaticCanUK your awareness raising could help save a life #sethslegacy

Can you join in November to raise awareness of the signs and symptoms of pancreatic cancer in my 11th year of supporting awareness month #sethslegacy please let me know if you can support and help make a difference to people affected by pancreatic cancer

Seth died of pancreatic cancer in June 2014 33 short & heart-breaking days after his diagnosis in Nov 2014 I did my first pancreatic cancer awareness month supported by colleagues and family
This Nov will be my 11th things have changed but there is much more to do #sethslegacy

I have been making some purple jewellery ready for November and
Pancreatic cancer awareness month #sethslegacy this will be my 11th year there is still so much to do

a pink background with a butterfly and the word hope ALT: a pink background with a butterfly and the word hope

This week I have been posting all of the updates to pancreatic cancer research as I do each week but there are so many at the moment with such potential to make a huge difference to people diagnosed lets hope they come fruition and make the difference needed #sethslegacy

Why would you bother to donate a few pounds to @pancreaticcanuk.bsky.social and support Lindsay in #GreatNorthRun ?
BECAUSE of the stats below
#sethslegacy
Please donate if you can

My friend Lindsay has previously run the Great North Run many times for @PancreaticCanUK in memory of Seth this year she is running again as the purple fairy as a colleague has recently died if you can spare a few pounds please help #sethslegacy ajbellgreatnorthrun2025.enthuse.com/pf/lindsay-d...

Toolkit to help GP surgeries prepare for using new tests for early detection of pancreatic cancer Research involvement opportunity to join a focus group to shape a project looking at why pancreatic cancer is hard to treat.

Healthcare professionals especially GPs we are looking for you input into a readiness project for new pancreatic cancer early detection if you can spare some time please join the project focus groups #sethslegacy
www.pancreaticcancer.org.uk/get-involved...

Toolkit to help GP surgeries prepare for using new tests for early detection of pancreatic cancer Research involvement opportunity to join a focus group to shape a project looking at why pancreatic cancer is hard to treat.

Healthcare professionals especially GPs we are looking for you input into a readiness project for new pancreatic cancer early detection if you can spare some time please join the project focus groups #sethslegacy
www.pancreaticcancer.org.uk/get-involved...

Spent an hour working on a digital story sharing the impact of communication in healthcare how making a complaint and sharing feedback can make improvements ... the renewed power in life when you live beyond cancer ... stories have such power #sethslegacy

Symptoms of pancreatic cancer
Symptom 9 Feeling or being sick from @pancreaticcanuk.bsky.social #sethslegacy

Three weeks in row I have shared
@SethsStory99
at conferences and lectures reaching over 500 ppl along with some of the stories from the work did in the nursing team at NHSE the thank you to all who shared their personal stories
stories have power #sethslegacy

Today I shared #sethsstory with the staff from Dorset Hospital Forest Home Hospice Proud to share Seth and my story as well as Sophie's Legacy story Claire & Bradleys story of incurable pancreatic cancer A great way to spend my lunch hour delivering #sethslegacy

Symptoms of pancreatic cancer from @PancreaticCanUK
Symptom 4 Weight loss
Losing a lot of weight without meaning to can be a symptom of pancreatic cancer The pancreas plays an important role in digesting food and controlling your blood sugar levels #sethslegacy

Focus on the symptoms of pancreatic cancer
1. Indigestion - causes a painful burning feeling in your chest upper tummy or throat and leave a bitter unpleasant taste in your mouth more details available from @pancreaticcanuk.bsky.social take time to find out more youtu.be/vzg4Rak_aJQ #sethslegacy

Finally was Claire and Bradley’s story of incurable pancreatic cancer and how hope changes over time esp when getting hospice care and unexpectedly surviving imminent death #sethslegacy

Homeward Bound: Seth's story Homeward Bound tells the true story of Lesley and her husband Seth Goodburn, who was diagnosed with pancreatic cancer following a short history of feeling unwell. He died just 33 days after diagnosis.

If you want to watch Seths Story you can find the link here on the @hospiceuk.bsky.social website hospiceuk.org/innovation-h... #sethslegacy

So great to give a lecture to 300 final year nursing students today at @bournemouthuni.bsky.social at the invitation of
Sue Baron sharing Seths Story
and how personal experience shapes my approach to digital storytelling #sethslegacy loving my spring colours too

@bookwormchris.bsky.social thanks for sharing #sethslegacy youtu.be/vzg4Rak_aJQ

What are the early symptoms of pancreatic cancer?

Pancreatic cancer often doesn’t cause symptoms in the early stages

As the cancer grows it may start to cause symptoms these may not be specific to PC & they may come & go to this can make PC hard to diagnose #sethslegacy