#LongCovid
#hEDS
#MECFS
#POTS
#MCAS
#Fibromyalgia
#AlopeciaAreata
#SolarUrticaria
#UVinducedChronicSpontaneousUrticaria

a woman in a suit says everything hurts and i 'm dying . ALT: a woman in a suit says everything hurts and i 'm dying .

#TFW the PCP you chose b/c they were familiar with your many, complicated, chronic illnesses says “I’m no longer comfortable treating you; you’re too complicated.”

#NEISVoid #ChronicPain #EDS #POTS #Chiari #MCAS #SolarUrticaria #lipedema #DercumsDisease #AllTheNeuralgias

#dermatology docs and scientists of bluesky, do you want another freak to study? I have one of the rarest skin disorders on the planet and kinda really over it. #solarurticaria #vampire but really just a fed up with being forced to be a recluse.

After 3 years of not being able to go outside I can go outside again
#SOLARURTICARIA is a severe uv allergy