Carol, with long dark hair, is facing the camera and smiling. Overlaid text reads: “I’m delighted to support Usher Syndrome Ireland as Company Secretary, as it’s a charity very close to my heart. Living with a disability, I know how important it is to feel seen, supported, and to be part of a community that understands and shares lived experiences.”. The logo for Usher Syndrome Ireland is placed at the bottom of the image.

Meet Carol who's delighted to support Usher Syndrome Ireland as our new Company Secretary!

A BIG welcome to the team Carol — we’re so thrilled to have you on board! 💚

#UsherSyndrome #Volunteer #Welcome #USHCommunity #LivedExperiences #InclusiveTech #AssistiveTechnology #TogetherWeCan

At its core, the genes related to Usher syndrome are Rare Genes.

But this name is also about reclaiming this diagnosis. Over the years, we've heard countless stories from the #USHCommunity about receiving the USH diagnosis - whether for themselves or a loved one - and what followed.
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#ushersyndrome #ushersyndroom #symposium #ushcommunity #ush2025