A collage of six images: five young adults from the youth panel sitting on stage with the USH2025 screen behind them; the Congrestival programme resting on someone’s lap; Carol and Deborah, founders of Usher Syndrome Ireland, standing side by side in front of a stage; a photo from the Can I Catch Your Eye exhibition; Prof Ronald Pennings, Dr Erwin van Wijk, and Carol Brill in front of a research poster; and a graph showing the number of Usher syndrome research publications from 1936 to 2021, with a sharp increase in recent years. Centre caption reads: “USH2025 – What We Learned.”

Our recap of #USH2025 - International Symposium on Usher Syndrome is now live, highlighting the exciting research & innovative work currently underway to find treatments for this rare disease: usherireland.org/ush2025

#UsherSyndrome #Genetics #IRD #Research #IRDs #HearingLoss #RP

It was my pleasure to speak at the #patient day for #USH2025 in Nijmegen today. I was able to share details of the multicentre international phase 2 #Ultevursen clinical trial run by #SepulBio for individuals with exon 13 mutations in the #USH2A gene.

Big up to my new PhD student Mutian Lian from @ucleye.bsky.social who presented his first poster on #UsherSyndrome at his first ever scientific conference🙌🏼! The first of many!! #USH2025 #CureUsher

Dr Maria Toms presenting at USH2025. She is standing at a podium on the left, screens projecting her slides in the background, and a sign language interpreter live on a video screen relaying all information to Usher patients in the audience.

Very proud of my post doc Dr Maria Toms who presented today at #USH2025 in Nijmegen, Netherlands on our research on developing a non-viral #GeneTherapy for #USH2A. Thanks to the organisers for a stimulating meeting, and its accessibility 👏🏼 @moorfieldsbrc.bsky.social @ucleye.bsky.social @crick.ac.uk

Inschrijven – USH2025

Last chance! Abstract submission for #USH2025 closes March 28! 📅USH2025 | June 19-20, 2025 | Nijmegen, Netherlands 🔬Focus: Genetics, pathophysiology, disease modeling, therapeutics & clinical research 👉Register now and submit your abstract www.ush2025.org/en/inschrijv... #ushersyndrome #research

#ushersyndrome #ushersyndroom #symposium #ushcommunity #ush2025

De registratie voor het 𝗨𝗦𝗛𝟮𝟬𝟮𝟱 𝗖𝗼𝗻𝗴𝗿𝗲𝘀𝘁𝗶𝘃𝗮𝗹, dat plaatsvindt op zaterdag 21 juni, de derde dag van USH2025, is nu geopend. 🧡
Meer informatie over het Congrestival vind je op onze website: www.ush2025.org/

#ush2025 #stopush #scientificconference #congrestival #ushersyndroom