A valued Member of #useMYdata and a huge voice in lobbying for collection & use of patient data to improve outcomes for MBC patients, Jo demanded that patients be heard and counted to make change: “Without data, how can we make any progress?” #JoTaylor we salute your courage & determination.

Graphic image promoting Salivary Gland Cancer Day, 4th October. Silhouette of two people hugging on a turquoise/blue background and a multi-coloured ribbon. Additional text reads: Once Community, One Cause: Standing together in solidarity for positive change.

Salivary gland cancer is rare, but raising awareness can lead to earlier diagnosis and better outcomes.
However, research is decades behind other cancers.
Sharing data is vital to inform understanding and develop effective treatments & therapies.
www.salivaryglandcancer.uk
#SGCDay
#UseMyData

Big thanks to @rorycj.bsky.social, a #useMYdata Member and speaker at our #NationalPatientDataDay for championing the patient voice and highlighting the importance of sharing good news stories about how our health data benefits research and our own care.

Patient data could power the NHS. Much of it is still stuck on paper The UK wants a technological revolution in healthcare but complex information systems will make that hard to deliver

“I naively thought that the NHS, being a national organisation, would have access to data just like a bank or building society.”
#useMYdata Member David Snelson on the impact for patients of NHS's labyrinthine systems for collecting and sharing our patient data @financialtimes.com on.ft.com/3ZnPerQ