#sponsored #ClinicalResearch #RareDisease #vEDS #VascularEDS #VascularEhlersDanlosSyndrome #ISS2025 #EhlersDanlosSyndrome⁠

It’s been such an encouraging day, seeing the passion of the clinicians and researchers who
are dedicated to their work within rarer types of EDS.
#ISS2025 #TogetherWeDazzle #EhlersDanlosSyndrome #VascularEDS #ClassicalEDS #KyphoscolioticEDS #Research #Genetics

What is vEDS? vEDS is a genetic connective tissue disorder that causes the blood vessels and organs to be fragile and prone to tearing. The complications of vEDS can be life-threatening and include aneurysm, dissection, and rupture of the arteries and rupture of organs. vEDS may also cause a variety of other symptoms, including extensive bruising and spontaneous pneumothorax.

Day 16 – Wear Red 4 vEDS ❤️
"Global REDS4VEDS Day! A day dedicated to raising awareness of vascular #EhlersDanlosSyndrome: show support for people living with #vEDS. 👉 Wear red, take a selfie, and post it on social media + #REDS4VEDS
Info: @ehlersdanlos.bsky.social
#VascularEDS #EDS #raredisease

vEDS - The Ehlers Danlos Society Learn about Vascular Ehlers-Danlos Syndrome (vEDS) and it's signs and symptoms. Navigate the body map to learn more about the condition.

❤️Help us raise awareness of vEDS today - Comment below with where in the world you're joining in from and share your photos!

Learn more about vEDS here www.ehlers-danlos.com/veds/

#vEDS #VascularEDS #Vascular #VascularEhlersDanlosSyndrome #EhlersDanlosSyndrome #MyEDSChallenge #EDSawarenessmonth

New Webinar Recording: Varicose Veins In Vascular Ehlers-Danlos Syndrome | VASCERN Watch our new webinar on varicose veins in Vascular EDS (vEDS) with Dr. Michael Frank. Learn about symptoms, risks, and safe treatment options.

🩸 What makes varicose veins in #vEDS different?

In Vascular Ehlers-Danlos Syndrome (vEDS), fragile blood vessels mean varicose veins can rupture, leading to serious complications.

📢 Missed our webinar on this? Watch now 👉 bit.ly/4k7FeMn

#VascularEDS #EhlersDanlos #RareDisease

🚨 Still waiting to register? Don't miss our webinar on varicose veins in vascular #EhlersDanlos syndrome this Thursday!

📅Feb 6, 2025 | ⏰ 17:00 CET
🎤With Dr. Michael Frank + Live Q&A
👉Register now: bit.ly/3Cm7Hwy

#VascularEDS #EDS #VaricoseVeins #Webinar

Delighted to join @bsky.app to raise awareness of #vascularEDS and share our first post.

Varicose veins in #vEDS? Let's talk about it!

📅 Join us on 6 Feb to:
📌Understand why varicose veins occur in vEDS.
📌Learn symptoms & safe management.
📌Get YOUR questions answered live by Dr. Michael Frank!

Register now! 👉 bit.ly/3Cm7Hwy
#VascularEDS #EhlersDanlos

❗️ Do you know the signs of varicose veins?
✔ Leg heaviness/swelling.
✔ Pain or discomfort.
✔ Twisted or bulging veins.

Learn why they occur in vascular EDS + how to manage them safely in our webinar on Feb 6

👉Register here: bit.ly/3Cm7Hwy
#VascularEDS #webinar