#apaperaday the last #WMS2025 @worldmusclesociety.org themed paper, a review by Relaix et al on rat models for Duchenne muscular dystrophy, published in Skeletal Muscle and specifically flagged by the journal for #WDAD2025 @worldduchenne.bsky.social. DOI: 10.1186/s13395-025-00395-1
Today is World Duchenne Awareness Day. Here’s my message about what living with DMD means for me and my loved ones. #WDAD2025
7 de septiembre, #DíaMundialdelaConciencaciónporDuchenneBecker #WDAD2025 💬🌍
Hemos unido nuestras voces en una cadena humana para decir algo urgente: Duchenne importa. Becker también.
¡Comparte y súmate a la cadena #DuchenneImporta #BeckerImporta!
¡Juntos #SumamosFuerzas por #Duchenne y #DMB ❤️!
#WDAD2025 🎈 C'est la Journée internationale de sensibilisation à la #myopathie de #Duchenne, maladie neuromusculaire génétique rare.
I-Motion, notre centre d'essai clinique est fier de contribuer à l'essai de thérapie génique de @genethonfr.bsky.social dont la phase pivot va démarrer.
#DMD #essai
Sept 7 is #WorldDuchenneAwarenessDay.
About 1 in 5000 boys is born with DMD, a rare genetic disorder that weakens muscles over time, affecting movement, breathing, & the heart. rareLife helps drive awareness, promote research, & support treatment innovation.
contactus@rarelifesolutions.com
#WDAD2025
A red graphic with a white outline of the globe in the center. The background is patterned with faint medical icons. Black banners over the globe read "WORLD DUCHENNE AWARENESS DAY" and "SEPTEMBER 7". The logo "PPMD" is at the top, and the hashtag "#WDAD2025" is at the bottom.
🎈It’s World Duchenne Awareness Day! Duchenne is a fatal childhood muscle disease. I’m trying to raise $250 for Parent Project Muscular Dystrophy today to fund research & support families. Every little bit helps—can you donate or share? Let’s do this together! #WDAD2025
👉 donate.parentproject...
🎈 On World Duchenne Awareness Day, we stand with the #Duchenne & #Becker Muscular Dystrophy community.
At JWMDRC, we’re committed to advancing care, research & inclusion—because Duchenne is a lifelong journey.
#WDAD2025
On #WDAD2025, @genethonfr.bsky.social launches the pivotal phase 3 trial of its gene therapy GNT0004 in 🇫🇷 & 🇬🇧.
✅ EMA & MHRA approvals
👦 64 boys (6–10 y/o)
💪 Promising phase 1/2 results
A step closer to a best-in-class treatment for #DMD.
#GeneTherapy #RareDisease
youtu.be/YtTXLbL3cI0?...
I wish you all a good #WDAD2025. Note that #apaperaday will be on holiday because I am on holiday. It will be back in the week of September 15 but due to a lot of teaching it will be a paper every few days that week most likely.
#Apaperaday #WDAD2025 @worldduchenne.bsky.social special to commemorate the World Duchenne Awareness Day theme: Family, the heart of care, I selected a paper from Shafrin et al from Current Medical Research and Opinion on caregiver risk preferences for therapies. Doi 0.1080/03007995.2025.2550347
The CMR is on a mission to understand and treat DMD and other neuromuscular disorders. We remain deeply committed to, and passionately support, #WDAD2025
#muscle #Duchenne #dystrophy #muscular
#WDAD 2025 7th Sept red balloon logo with interabled couple as family
On World Duchenne Awareness Day 2025, I ask researchers to stop pasting DMD prognosis with colonised fatalistic & outdated statistical
lifespans in publications. Update to modern biology and thus unpredictable prognoses! #DMD #WDAD2025 #Duchenne
We encourage our network to take part — whether by raising awareness, supporting research, or simply wearing red to stand in solidarity. Every effort matters. #WDAD2025
How do you plan to support World Duchenne Awareness Day this year? 💬
These costs are difficult to estimate, but also relate to e.g. loss of income as parents may not be able to work full time due to care and costs related to adapting homes etc. In either case, my utmost respect to Duchenne patients and families and stay tuned for a Sunday #WDAD2025 special
#apaperaday Duchenne themed, as Sunday is @worldduchenne.bsky.social #WDAD2025 World Duchenne Awareness Day themed: Family the heart of care. Today's pick is from Diesing et al in Orphanet Journal of Rare disease on health care costs for Duchenne patients in Germany. DOI: 10.1186/s13023-025-03906-x
U dumb asses need to look at the DMD drugs including the PMO's, your lost in you goddamn golden standard bullshit: The
@worldduchenne.bsky.social
#WDAD2025 theme continues with a paper by Iff et al on long term cardiac follow up of Duchenne patients treated with eteplirsen,
#apaperaday @worldduchenne.bsky.social #WDAD2025 Duchenne themed this week with a paper from Journal of Neurology by Wahlgren et al on a retrospective analysis to assess severe comorbidities in Duchenne patients in Sweden DOI: 10.1007/s00415-025-13323-6
#apaperaday The @worldduchenne.bsky.social #WDAD2025 theme continues with a paper by Iff et al on long term cardiac follow up of Duchenne patients treated with eteplirsen, published in @journalnd.bsky.social DOI: 10.1177/22143602251366721
The paper makes clear why diagnosing early is important as you may otherwise miss the optimal time to start steroids, & thus get less benefit. So all patients deserve a timely diagnosis, regardless of race or ethnicity. This is why raising awareness of Duchenne is important. #WDAD2025
'#apaperaday Today's pick is Duchenne themed again for @worldduchenne.bsky.social #WDAD2025 this weekend. The pick is from Thomas et al on trends in steroid use in Duchenne males during 2000-2015 in 6 USA states. DOI: 10.1177/08830738251367466
#apaperaday Duchenne therapy themed, working our way to #WDAD2025 this Sunday. Today's pick is from Annals of Clinical and Translational Neurology on long term evaluation of givinostat treatment in Duchenne patients by McDonald et al. DOI: 10.1002/acn3.70165
This ends the Duchenne gene therapy themed week. Next week will be Duchenne themed again, working towards the @worldduchenne.bsky.social #WDAD2025 World Duchenne Awareness Day on September 7, with the theme "Family, the heart of care"
www.worldduchenneday.org/2025-family-...
iDelirium @iDelirium_Aware
See our new page -Delirium in the Arts—a creative space where art meets delirium awareness! From poetry to paintings, explore how the arts can deepen our understanding of #delirium #WDAD2025 Have a resource to share? Submit it to our site! deliriumday.com/deliriumarts
Raising #delirium awareness at the Norwegian parliament @stortinget.no
#oslodeliriumresearchgroup #wdad2025 @nidus-delirium.bsky.social @amaclullich.bsky.social
❤️ "Providing comfort in a frightening world."
"Dr. Sharmella Summan, who experienced #delirium, describes how much difference a few kind words from a porter made to her.
➡️ Make conscious kindness part of our every interaction with someone experiencing delirium.
#WDAD2025
"A moment of reprieve comes. A gentle hand reaches through the darkness and lays itself on my contracted soul. A porter tells me what is happening in drip feed... it comforts me."
A striking account of #ICUDelirium, and the power of simple, compassionate connection.
#WDAD2025 #Delirium
It's World Delirium Awareness Day!
Delighted to launch our new info leaflet at TUH Critical Care, supporting families to talk to those with #delirium. Delirium can be a confusing & frightening experience for all.
Thanks to @nydahlpeter.bsky.social et al for sharing 🙏
#WDAD2025 #ICUDelirium
"The impact of Delirium was massive and continues to be an almost constant piece of baggage in my life"
As #WDAD2025 comes to an end, I share with you a blog post that I hope touches on this year's theme of raising awareness...
Keep banging the drum 😉
fromdeliriumtoreality.com/2025/03/12/w...
Improvements in #delirium detection & coding are possible.
Scotland & England: x3-4 increases between 2012-2020.
pubmed.ncbi.nlm.nih.gov/37654785/
#WDAD2025
We had such a great day in Greater Manchester UK. Lived experience. Community pathways. Acute deterioration system wide change. Singapore colleagues. Small group workshops. Speakers and organisers in this photo. #WDAD2025
