Open Context turns 20 this year! To mark the occasion, we finally wrote up a long article that provides details about how we organize and publish data, and how we relate to the broader landscape of data repositories in #archaeology
https://doi.org/10.11141/ia.71.3
#datacuration #openscience […]
The current National Data Opt-out, introduced in 2018, has been taken up by over three million people. However, exemptions granted for essential planning and operational work mean it no longer reflects what many believe it offers. This risks undermining trust. It also reflects a simple truth: the NHS cannot function in ways the public should be able to expect without reliable information. This information helps shape safe, effective, sustainable services and improves the care people receive. Being open about this reality, clear about the safeguards that protect people's data and ensuring these are strong and credible, remains vital if we are to maintain public confidence.
National Data Guardian* 2024-2025 report www.gov.uk/government/p...
* for Health and Adult Social Care in England
#NHSdata #patientdata #caredata #datasharing #dataprotection #datapolicy
Cool APIs and workflows being developed to link indigenous communities with their data. localcontexts.org #CAREdata
I think there are huge benefits that can come from improved data linkage and access but this looks like it has not learned the lessons from #caredata in terms of maintaining trustworthiness through public engagement
https://on.ft.com/3uo5dDQ
#Caredata is dead. Long live caredata theconversation.com/care-data-has-been-scrap... @ConversationUK
More coverage of #caredata closure & Caldicott review in @thetimes
www.thetimes.co.uk/article/ea7f0ce0-43be-11...
Here's our overview on how well intentioned #caredata got itself into a mess www.statslife.org.uk/features/1921-care-data-... https://x.com/hetanshah/status/750678739651010560
Blog from @Freeman_George on Caldicott including the closure of #caredata www.gov.uk/government/speeches/revi... (HT @roelandb)
NHS told to strengthen data security - Caldicott review trailed in @thetimes
www.thetimes.co.uk/article/358561dc-21e9-11... #caredata
Minister @freeman_george calls for greater #datasharing in health, noting failures of #caredata www.ukauthority.com/news/6164/minister-says-... (HT @michaelcross)
Principles for data infrastructure from @odihq - good start. Need to say more on governance? (CF #caredata) theodi.org/blog/seven-principles-to...
The botch up of #caredata continues to have implications: @hscic now withholding data from other NHS bodies: policyskeptic.blogspot.co.uk/2015/12/in-planning-to-r...
Here is a bit of background on #caredata www.statslife.org.uk/features/1921-care-data-... @oiioxford @turinginst
Looking forward to speaking @oiioxford @turinginst workshop on data ethics today about the #caredata fiasco http://www.oii.ox.ac.uk/events/?id=746
#bigdata is a necessity in improving our health reckons @jameskirkup (But see #caredata etc - execution counts) www.telegraph.co.uk/news/health/11961415/Goo...
I see Tim Kelsey is leaving the NHS. Where does that leave #caredata? Here's our overview of that programme again: www.statslife.org.uk/features/1921-care-data-...
#Caredata pilots delayed until January www.civilserviceworld.com/articles/news/caredata-p... @cswnews
Patient data must be safeguarded @guardian letter from @AMRC @wellcometrust & others http://gu.com/p/4b2zm/stw #caredata
#Caredata concerns dismissed as ‘scare stories’ by NHS data chief https://shar.es/1sZUkW
We should do more to facilitate sharing of health data for medical research says @timberners_lee http://on.ft.com/1IOewmb #caredata
NHS #caredata still leaks like a sinking ship, but ministers set sail regardless theconversation.com/nhs-care-data-still-leak... @ConversationUK @EerkeBoiten
#Caredata MPA ‘red’ risk rating may be out of date central-government.governmentcomputing.com/news/caredata-mpa-red-ri... HT @owenboswarva
Major Projects Authority rates #caredata project near unachievable: http://on.ft.com/1BFZ9dE #datasharing
#caredata in @Telegraph - continues to damage perceptions of #datasharing for public good - http://t.co/OleX1dA8l4 HT @medConfidential
