CHM Overview: Choroideremia (CHM) is an ultra-rare inherited retinal disease. It is X-linked, primarily affecting males, and causes progressive vision loss, often starting with night blindness and narrowing of the visual field.

Who Is Affected? An estimated 1 in 50,000–100,000 males worldwide are diagnosed with CHM. While the condition is rare, the impact on families and communities is profound. “Ultra-rare” describes the diagnosis, not the lives it touches.

Why Awareness Matters: Awareness drives research, connects families, and strengthens the CHM community. The Choroideremia Research Foundation (CRF) works every day to support patients, fund studies, and raise visibility for CHM.

How You Can Help: Share posts and stories. Listen to patient voices. Support research and advocacy. Attend CRF events. Donate to advance sight-saving research. Every action helps the CHM community. Donate today: curechm.org

SHARE this post to help educate your family, friends, and community about Choroideremia (CHM) and why awareness matters! Make a difference this Rare Disease Day: secure.qgiv.com/for/choroide...

#Choroideremia #CureCHM #RareDiseaseAwareness

"Graphic with a blue background promoting Rare Disease Day. Text reads: 'Rare Disease Day is Almost Here! See How the CHM Community Makes an Impact,' followed by bullet points: CRF-Funded Studies, Patient & Family Initiatives, International Advocacy Efforts, Inspiring Community Stories, and More! Logos for CRF and Rare Disease Day are shown, along with an iPhone displaying the CRF 2025 Annual Report. Website: curechm.org."

As Rare Disease Day (Feb 28th) approaches, we celebrate the CHM community & CRF’s work!
"It’s been awhile since I looked at CHM/CRF… I would strongly encourage all members to TAKE A LOOK!!! Worth it!" – CHM carrier


Annual Report:
drive.google.com/file/d/1flEj...

#RareDiseaseDay #Choroideremia

Countdown to Rare Disease Day graphic featuring a February 2026 calendar with February 28 circled and arrows pointing to the date. Text reads, “Raise your voice for choroideremia (CHM)” alongside the Rare Disease Day logo.

Rare Disease Day is February 28! Help shine a light on choroideremia (CHM). On Saturday, share a post and tag @curechm to grow awareness and support sight-saving research. Make a difference today:
secure.qgiv.com/for/choroide...

#RareDiseaseDay #RareDiseaseAwareness #Choroideremia #CureCHM

image of a calendar with text that says 'MAY 09 CANADA CHM PATIENT & FAMILY MEETING 9:00 AM-5:00 PM SANDMAN SIGNATURE TORONTO AIRPORT HOTEL’

Save the Date! Canada CHM Patient & Family Meeting is May 9th, 2026 | 9am–5pm | Sandman Signature Toronto Airport Hotel. Free, in-person event with CHM research updates, expert speakers, and time to connect with other CHM families. More details soon! #Choroideremia #CHM #RareDisease #CanadaCHM

Collage of three photos: a group photo of Joanna, Matt, and Michelle after the race; a mid-race photo of Joanna giving a thumbs-up; and a photo of her running in a blue Team CHM shirt.

Joanna, Matt, & Michelle took on the Alicante Marathon in Spain, & Joanna proudly sported her Team CHM shirt on race day! While this wasn’t a fundraiser, every moment of visibility helps raise awareness for choroideremia (CHM).

#teamchm #curechm #marathon #Alicante #choroideremia

#GivingTuesday2025 GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. Give to the Choroideremia Research Foundation this GivingTu...

Tomorrow is GivingTuesday!

Your gift to CRF will be doubled up to $25K thanks to two generous donors.

Twice the impact. Twice the hope. Let’s do this.
curechm.salsalabs.org/givingtuesda...

#GivingTuesday #curechm #choroideremia

Group of 84 golfers who attended Course to a Cure fundraiser.

Group of four guys raising their drinks and giving cheers on the golf course.

Cole Schroeder Golf Outing Est. 2025 Course to a Cure Saving Sight - Building Hope Banner

Course to a Cure Cole Schroeder golf outing was a huge success! ⛳ 12 volunteers & 84 golfers at Westchester GC raised $6,200+ for CHM research! #Choroideremia #GolfForACause

An image of a crosswalk with Cory MacDonald posing with his white cane. Text that says October 15, 2025 White Cane Safety Day. Celebrating independence, awareness, and mobility for people who are blind or visually impaired.

October 15th marks White Cane Safety Day—celebrating independence, mobility, and confidence for people with vision loss.

#WhiteCaneSafetyDay #Accessibility #CureCHM #VisionLossAwareness #Choroideremia

Nutrition, Diet & Exercise for CHM Health with Dr. Katie Bales
youtu.be/AyYkzWy8J-8?...
#CureCHM #Choroideremia #RareDiseaseCommunity

CRF Research Spotlight: Collagen Mimetic Peptides with Dr. Malia Edwards
youtu.be/ZgF3D6DeOGU?...
#Choroideremia #RareDisease #RetinaResearch

CRF Research Spotlight: Restoring Metabolic Homeostasis with Dr. Kathleen Boesze-Battaglia

youtu.be/tsJr3HUD3_c

#Choroideremia #RareDisease #SavingSight #RetinaResearch

CRF Research Spotlight: CHM Updates with Ben Shaberman
youtu.be/xIqQqvnlz3E?...
#CureCHM #Choroideremia #RareDisease #SavingSight

Optogenetics with Dr. Eric Daniels, Kiora Pharmaceuticals

youtu.be/sFVdAyXXTOk?...

#CureCHM #Choroideremia #RareDisease #SavingSight #RetinaResearch

Optogenetics with Dr. Raj Agrawal, Ray Therapeutics

youtu.be/bMpK4_pc2qI?...

#CureCHM #Choroideremia #RareDisease #SavingSight #RetinaResearch

CHM 101 with Dr. Ian MacDonald
youtu.be/rj8EOfyf0KM?...

#CureCHM #Choroideremia #RareDisease #SavingSight #RetinaResearch #Ophthalmology

A graphic of text that says 'SINCE 2000: CRF'S MILESTONES AT A GLANCE with a chart that states: $6M In Research Funding 100+ Research Grants 140 Research Network Members 25 Years of Community & Support 4,375+ CHM Family Members 7,375+ Social Media Followers 60 Countries Connected #1 CHM Organization Worldwide'

Since 2000, CRF has grown worldwide: 25 years of support, $6M+ in research, 60 countries connected, 4,375+ CHM families, and being the #1 CHM org.

Join us and help fuel research and community growth!

Become a member today: curechm.org/for-patients...

#CureCHM #25Years #Choroideremia

Choroideremia Research Goes Global | ARVO 2025 Recap

#ARVO2025 #VisionResearch #IRDs #Choroideremia

👋 Welcome to the Choroideremia Research Foundation!

We fund research, raise awareness, and support those affected by CHM, a rare inherited retinal disease that causes blindness.

Follow for updates, resources & ways to help!

#RareDisease #Choroideremia #BlindnessAwareness #GeneTherapy #CureCHM

Oxidative Stress, Inflammation and Altered Glucose Metabolism Contribute to the Retinal Phenotype in the Choroideremia Zebrafish Reactive oxygen species (ROS) within the retina play a key role in maintaining function and cell survival. However, excessive ROS can lead to oxidative stress, inducing dysregulation of metabolic and ...

Here is our latest paper on #Choroideremia (CHM). We looked at the transcriptomic signature of the #CHM #zebrafish #retina and found increased oxidative stress, #inflammation & altered glucose metabolism. Read more here 👉🏼 www.mdpi.com/2076-3921/13...