Social Media Listening in Congenital Ichthyosis: Quantitative and Qualitative Findings This study analyzed social media posts from patients with congenital ichthyosis and their caregivers across Europe and found that users, primarily young women, discussed hygiene care, psychological impact, therapeutic challenges, and lack of disease awareness. This allowed for the identification of unmet needs and potential actions to improve patients’ quality of life.

JMIR Formative Res: Social Media Listening in Congenital Ichthyosis: Quantitative and Qualitative Findings #CongenitalIchthyosis #SocialMediaListening #PatientCare #MentalHealthAwareness #DiseaseAwareness

Scientists develop first gene-editing treatment for skin conditions – BioNews Central Researchers have created a topical CRISPR-based gene therapy that could offer a lasting cure for a range of skin disorders. ...

Researchers have created a topical #CRISPR -based #GeneTherapy that could offer a lasting cure for a range of #SkinDisorders. 
#CongenitalIchthyosis #Ichthyosis #GeneEditing

LEO bulks up with deal for Boehringer skin drug LEO Pharma has licensed a medicine for a rare form of psoriasis from Boehringer Ingelheim, plugging a gap in its near-term product portfolio.

#dermatology #LEO #Boehringer #LEOPharma #psoriasis #BoehringerIngelheim #Spevigo #spesolimab #IL36inhibitor #psoriasisflares #generalisedpustularpsoriasis #GPP #IL36mediatedskindiseases #palmoplantarpustulosis #hidradenitissuppurativa #congenitalichthyosis
pharmaphorum.com/news/leo-bul...