“EDS comprises a group of #genetic conditions with different types of genetic causes due to altered #genes within the extracellular matrix of #ConnectiveTissues. #hEDS is the only type of #EDS that does not have a known genetic marker, yet.”: buff.ly/aeGpJkD
from JeannieDiBon
Hashtag
#connectivetissues
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#LongCovid has seen an increase in #POTS / #Dysautonomia & #MCAS - Many with #EDS are undiagnosed #TheTrifecta
@houstonmethodist.bsky.social many #EDS patients have died because tube feeding has been denied them and they have starved to death.
#ItsNotHysteria #ConnectiveTissues
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What a webinar I wanted to keep asking questions but had to ensure others had their questions too. I think we’ll do more
#sedation
#anaesthetics
#connectiveTissues
#phobias
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Happy to be here, sharing our message!
#marfansyndrome #loeysdietz
#ehlersdanlos #dogoodstuff #connectivetissues #hearthealth
#aortichealth #roadrunning #runforcharity
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