Donate to Skylar Needs Your Help: Facing Disability, organized by Skylar Rungren My name is Skylar, and in 2021 I fainted in the shower and developed cauda eq… Skylar Rungren needs your support for Skylar Needs Your Help: Facing Disability

‼️ My friend is getting a massive surgery soon, which includes removing their bladder and colon.

Please considering donating to their surgery fund or reposting this to spread the word! ‼️

#loeysdietz #ehlersdanlos #eds #heds #disability #ostomy #lgbtq

gofund.me/9d130b9d

📢 New resource alert! A gene compendia summarising key genes involved in heritable thoracic aortic diseases like #Marfan & #LoeysDietz syndromes.

For #geneticists, #cardiologists, #researchers & more.
Explore it here ➡️ bit.ly/4kp2YL5

#RareDiseases #Genetics

Rare disease research is a team effort. 💪

This week, the University of Barcelona awarded Prof. Bart Loeys & Prof. Hal Dietz a Doctor Honoris Causa for their work on #Marfan & #LoeysDietz syndromes. A well deserved honour!

🎥Watch the ceremony here: bit.ly/415uXri

#raredisease #research

Happy to be here, sharing our message!

#marfansyndrome #loeysdietz
#ehlersdanlos #dogoodstuff #connectivetissues #hearthealth
#aortichealth #roadrunning #runforcharity