Watch Matter of Time | Netflix Official Site Eddie Vedder's soul-stirring Seattle benefit concert fuels this documentary about the race to cure the rare genetic disorder epidermolysis bullosa (EB).

watched — and cried my way through — Matter of Time this morning. sooooo inspiring!! …and the acoustic moments of eddie singing on the benaroya hall stage? glorious.

highly recommend!!!

www.netflix.com/us/title/821...

#cureEB

Butterfly Series Mystery Reveal - TikTok LIVE Events 0 viewers have registered for this event | Now, why have I been saying “?Mystery?” this past week? Well today I will reveal it live. My reason for asking for favorite colors and the work in progress!

Now, why have I been saying “?Mystery?” this past week? Well today I will reveal it live. #bluskyartist #Art #bluskyart #nimotv #globalart #ebawareness #illustration #digitalart #magicalgirl #anime #otaku #butterflychildren #debra #cureEB #family #clipstudiopaint

www.tiktok.com/live/event/7...

Former St. Louis musician’s family shines a spotlight on E.B. | St. Louis Magazine This month, the Holler family will be headed to the Tribeca Film Festival—which would normally be pretty heady stuff for a family with young kids. But for the

Thank you @sarahfenske.bsky.social for spotlighting EB, Princess Rowan and Eddie Vedder!
#CureEB

www.stlmag.com/family/epide...

Blenheim Triathlon in Support of Kids with EB Help Erin Moore raise money to support Cure EB

Join Erin Moore in supporting Cure EB, a charity founded by parents to fight Epidermolysis Bullosa. How can we make a difference together? #CureEB

https://www.justgiving.com/fundraising/Erinmoorebooks