My wonderful husband, Dr John Bladen, and I standing in front of a large banner saying Cure Usher Ball 2025
Thank you #CureUsher for hosting a wonderful charity ball to raise vital funds for #research and raising #awareness of #UsherSyndrome 💙
Big up to my new PhD student Mutian Lian from @ucleye.bsky.social who presented his first poster on #UsherSyndrome at his first ever scientific conference🙌🏼! The first of many!! #USH2025 #CureUsher
The kindness people bring make such a difference . Today me and the family arrived at our local park with the kids . The cafe there - Flutterbites - had set up an amazing day of raffles and homemade gifts , to raise money for the charity we are patrons of #cureusher. Just heard they raised over £700
Good day ( apart from the traffic ) met an amazing guy wanting to help us raise the profile of usher syndrome. Watch this space . About to do an interview for the Express newspaper to highlight the condition . #cureusher #ushersyndrome #helpsaveadeafchildssight
On my way to London to join the foundation fighting blindness event. Early start but fascinated to hear more about this team #cureusher
